Accessing Community Counts Data

The Community Counts project builds upon the important work started through the Universal Data Collection (UDC) project. The CDC, ATHN, and the USHTCN are committed to providing investigators the opportunity to use and analyze data collected as part of Community Counts and/or UDC, consistent with the purposes for which they were collected and patients’ authorization for data use. We encourage HTC researchers to access the data and use it for your research. Follow our infographic below to find the different ways to access the data.

We’ve provided the following helpful guides:

Researchers interested in using Community Counts data for a project Community Counts Data Use Request Guide
An HTC or region that needs Community Counts data for internal use such as QI Community Counts Internal Use Data Request for Regions and HTCs Guide
Anyone who wants to share/present or disseminate Community Counts data How and When to Request Approval to Present and/or Disseminate Community Counts Data
How to keep patient confidentiality and avoid sharing small counts Concealing Counts of 5 or Fewer Cases

If you have any questions or need assistance, contact

Community Counts is a project supported by cooperative agreement NU27DD000020 awarded to the American Thrombosis and Hemostasis Network (ATHN) in partnership with the U.S. Hemophilia Treatment Center Network (USHTCN). The cooperative agreement is an annual financial assistance award totaling $4,300,000, which is 100% funded by the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Health and Human Services (HHS). The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by CDC/HHS, or the U.S. Government.