ATHN Technical Tools & Support
The foundation of our seamless, integrated data management infrastructure is ATHN Clinical Manager—a customized tool that enables clinicians to gather, manage, and analyze patient demographic, clinical, and genetic information.
ATHN Clinical Manager
ATHN Clinical Manager is a streamlined interface that provides greater efficiency and flexibility in the data entry process. It allows HTCs to record data only once and then reuse it over and over as needed—for care, clinic management, research, surveillance, and reporting to federal and state agencies. Clinical Manager requires minimal local information technology (IT) support, protects patient confidentiality, and guards data security.
ATHN Clinical Manager provides our HTC Affiliates with a powerful management tool that is:
- Specific for bleeding and clotting disorders
- Easy to use and technically supported by firstname.lastname@example.org
- Safe, secure, and backed up regularly
- Making data available 24x7 for care, surveillance, and research
ATHN Study Manager
ATHN Study Manager has been designed to seamlessly integrate with ATHN Clinical Manager, the HTC network's system of choice for clinical research, now deployed across all ATHN Affiliates. Using the ATHN infrastructure saves time and minimizes errors in start-up and study implementation.
Training and Technical Support
To prepare ATHN Affiliates in using these systems for maximum gain, ATHN offers group training programs and regular webinars, online technical support to triage individual site issues during regular business hours, and an online Document Library that provides help documents and training videos for ongoing reference.
WAPPS-Hemo and ATHN Systems Integration
ATHN Systems has integrated with WAPPS-Hemo, or Web-Accessible Population Pharmacokinetics Service for Hemophilia, making it possible to send WAPPS-Hemo requests directly from ATHN Systems.
What is WAPPS-Hemo?
WAPPS-Hemo is a centralized, dedicated, actively moderated database that allows participating hemophilia treatment centers (HTCs) to input factor VIII and factor IX plasma levels from sparse samples and receive individual pharmacokinetic (PK) estimates. These estimates are generated by an automated proprietary population PK engine and are then manually validated.
How is WAPPS-Hemo integrated into ATHN Systems?
Being able to submit PK requests directly from ATHN Systems streamlines data entry for HTCs. When a PK request is submitted, any data entered directly on the WAPPS-Hemo form is used to generate product usage, visit, and/or lab test records in ATHN Systems. Through the integration, users can:
- Enter PK request data directly on the WAPPS-Hemo form
- Pull data from existing ATHN Systems records
- Use a combination of both methods
- Download the PK estimate directly from ATHN Systems
Why is WAPPS-Hemo an important development?
The WAPPS-Hemo service was developed under the direction of Dr. Alfonso Iorio at McMaster University in Hamilton, Ontario. It enables providers to tailor treatment to individual patient characteristics, which leads to better, more cost-effective care. By using population pharmacokinetics:
- Fewer samples need to be drawn from the patients
- Providers do not need to perform the calculations
In addition, the PK estimates generated through WAPPS-Hemo can be used to enrich the ATHNdataset, opening up new avenues for research and analysis. This is version 1.0 of the WAPPS-Hemo/ATHN Systems integration and future enhancements are planned.