Our Top Stories
Research
- ATHN 8 – PUPs Matter Study Now Enrolling
Learn more about this new national cohort study of previously untreated patients (PUPs) with congenital hemophilia. - ATHN 2 – Factor Switching Study
Get the latest updates on this groundbreaking study on inhibitor development. - ATHN 4 – Transition of Care for VTE Patients
View our progress report on the transition of care for patients with venous thromboembolism at ATHN-affiliated hemophilia treatment centers.
National Projects
- ATHNdataset
Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database. - ATHN Data Quality Counts
This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset. - Community Counts
Now available: Community Counts Data Reports through the CDC, including information on demographics, factor product use, bleeding events, complications, and more.
NHPCC
- Quality Initiatives
Learn how the science and process of quality improvement, combined with evidence-based practices and tools can help HTCs track quality improvement using national quality indicators. - Action Guide
Get the Action Guide for Improving Care for People with Bleeding Disorders—a go-to resource for national quality improvement focusing on the transition from pediatric to adult care.
Upcoming Events
- 6-8
FEB, 2019 - 12th Annual Congress of EAHAD
Czech Republic, Prague
- 7-10
APR, 2019 - 2019 Newborn Screening & Genetic Testing Symposium
Chicago, IL
- 9-11
May, 2019 - HTRS/NASTH 2019 Scientific Symposium
New Orleans, LA
Featured Publications
: A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population published in the journal Blood Advances. Download full article
: Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research. Download full article
Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal. Download full article
