Our Top Stories
- ATHN Transcends
ATHN Transcends is a natural history cohort study focused on participants with congenital or acquired non-neoplastic blood disorders and connective tissue disorders with bleeding tendencies. ATHN Transcends provides clinical researchers with a uniform, secure, unbiased, and enduring method to collect long-term safety and efficacy data to increase knowledge in these important areas of research.
- Electronic Informed Consent (eIC) and ATHN 9
ATHN’s new eConsent portal will facilitate and streamline the informed consent process for patients in ATHN studies. The eConsent portal is currently only available for participants enrolling in ATHN 9.
- Healthy People 2030 Champion
ATHN is proud to have been recognized as a Healthy People 2030 Champion by the U.S. Department of Health and Human Services’ Office of Disease Prevention and Health Promotion. This distinction is awarded to organizations that have demonstrated interest and commitment to disease prevention and health promotion, as well as having an organizational mission that is aligned with the HP2030 program vision of “a society in which all people can achieve their full potential for health and well-being across the lifespan.”
- ATHN Data Quality Counts
This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.
- Office of Public Health Initiatives
The ATHN Office of Public Health Initiatives (OPHI) aims to leverage ATHN’s capabilities to support medically underserved populations by strengthening our partnerships throughout the blood disorders community. We’re working to establish a Health Equity Program, expand ATHN’s focus on sickle cell disease, and more.
- ISTH 30th Congress
- Thrombosis & Hemostasis Summit of North America (THSNA)
Chicago, IL / Virtual
- NHF’s Annual Bleeding Disorders Conference
Houston, TX / Virtual
Featured PublicationsTherapeutic and technological advancements in haemophilia care: Quantum leaps forward published in Haemophilia, February 2022. Download full article
Health insurance coverage and switching among people with hemophilia A in the United States published in Journal of Managed Care + Specialty Pharmacy, November 2021. Download full article
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment published in Haemophilia, September 2021. Download full article