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Our Top Stories

Research

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National Projects

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  • ATHN Data Quality Counts
    This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.
  • Community Counts
    Now available: Community Counts Data Reports through the CDC, including information on demographics, factor product use, bleeding events, complications, and more.
  • ATHNdataset
    Researchers are using this valuable community resource to better understand factor VIII and IX deficiency, von Willebrand disease, and more. Wonder what is in the ATHNdataset?

NHPCC

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  • Quality Initiatives
    Learn how the science and process of quality improvement, combined with evidence-based practices and tools can help HTCs track quality improvement using national quality indicators.
  • Action Guide
    Get the Action Guide for Improving Care for People with Bleeding Disorders—a go-to resource for national quality improvement focusing on the transition from pediatric to adult care.

Upcoming Events

1-4
DEC, 2018
60th ASH Annual Meeting & Exposition
San Diego, CA
6-8
FEB, 2019
12th Annual Congress of EAHAD
Czech Republic, Prague
7-10
APR, 2019
2019 Newborn Screening & Genetic Testing Symposium
Chicago, IL

Featured Publications

ATHN 1: A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population published in the journal Blood Advances. Download full article
ATHN 4: Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research. Download full article
NHPCC Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal. Download full article