Better data leads to better care. At ATHN, we partner with the blood disorders community, government, and industry by providing technology to manage data, support research, measure outcomes--and ultimately improve care.

Our Top Stories


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  • ATHN Transcends
    ATHN Transcends is a natural history cohort study focused on participants with congenital or acquired non-neoplastic blood disorders and connective tissue disorders with bleeding tendancies. ATHN Transcends provides clinical researchers with a uniform, secure, unbiased, and enduring method to collect long-term safety and efficacy data to increase knowledge in these important areas of research.

National Projects

  • MMWR Evaluation of CDC's Hemophilia Surveillance Program
    ATHN is excited to share news from our Centers for Disease Control and Prevention (CDC) partners about a report published in the CDC Morbidity and Mortality Weekly Report (MMWR). We congratulate our CDC and HTC partners and encourage you to review the report. ATHN looks forward to supporting the CDC and HTCs over the next five years of this collaborative project.
  • ATHNdataset
    Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database.
  • ATHN Data Quality Counts
    This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.


  • National Patient Survey Results
    Learn more about the results of the first-ever national patient satisfaction of care survey received across the U.S. Hemophilia Treatment Center Network (USHTN) published in Haemophilia.
  • New Mountain States QI Case Study
    Read the latest NHPCC case study, which follows centers from the Mountain States region that have successfully implemented transition of care QI projects.
  • Patient Experience of Care Survey
    This survey is an important tool for capturing data and reporting on transition of care planning for the Healthy People 2020 DH-5 measure. ATHN encourages all HTCs to invite their patients to participate.

Featured Publications

Characterizing the Use of Anticoagulants in Children Using the American Thrombosis and Hemostasis Network Dataset (ATHNdataset) published in Thrombosis Research. Download full article
A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network (ATHN) Cohort is the largest cohort of women and girls with bleeding disorders to date. Download full article