Our Top Stories
Research
- ATHN 8 – PUPs Matter Study Now Enrolling
Learn more about this new national cohort study of previously untreated patients (PUPs) with congenital hemophilia. - ATHN 2 – Factor Switching Study
Get the latest updates on this groundbreaking study on inhibitor development. - ATHN 4 – Transition of Care for VTE Patients
View our progress report on the transition of care for patients with venous thromboembolism at ATHN-affiliated hemophilia treatment centers.
National Projects
- Healthy People 2020 Report from Community Counts
Comprehensive care works! Check out our new graphic report for data on the Healthy People 2020 (HP2020) measures for people with bleeding disorders. - ATHNdataset
Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database. - ATHN Data Quality Counts
This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.
NHPCC
- New Quality Improvement Case Study
Learn about how the ATHN-affiliated HTC Western New York BloodCare is engaging patients and families to improve the transition from pediatric to adult care. - Patient Experience of Care Survey
This survey is an important tool for capturing data and reporting on transition of care planning for the Healthy People 2020 DH-5 measure. ATHN encourages all HTCs to invite their patients to participate. - Action Guide
Get the Action Guide for Improving Care for People with Bleeding Disorders—a go-to resource for national quality improvement focusing on the transition from pediatric to adult care.
Upcoming Events
- 5-8
NOV, 2019 - NSGC 38th Annual Conference
Salt Lake City, UT
- 13-15
JAN, 2020 - Partners in Bleeding Disorders, Basic Partners Program
Indianapolis, IN
- 21-22
APR, 2020 - Hemostasis and Thrombosis Research Society (HTRS) Research Colloquium
Chicago, IL
Featured Publications
“Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources” published in the journal Haemophilia. Download full article
Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research. Download full article
Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal. Download full article
