Better data leads to better care. At ATHN, we partner with the blood disorders community, government, and industry by providing technology to manage data, support research, measure outcomes--and ultimately improve care.

Our Top Stories


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National Projects

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  • Healthy People 2020 Report from Community Counts
    Comprehensive care works! Check out our new graphic report for data on the Healthy People 2020 (HP2020) measures for people with bleeding disorders.
  • ATHNdataset
    Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database.
  • ATHN Data Quality Counts
    This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.


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  • New Quality Improvement Case Study
    Learn about how the ATHN-affiliated HTC Western New York BloodCare is engaging patients and families to improve the transition from pediatric to adult care.
  • Patient Experience of Care Survey
    This survey is an important tool for capturing data and reporting on transition of care planning for the Healthy People 2020 DH-5 measure. ATHN encourages all HTCs to invite their patients to participate.
  • Action Guide
    Get the Action Guide for Improving Care for People with Bleeding Disorders—a go-to resource for national quality improvement focusing on the transition from pediatric to adult care.

Featured Publications

“Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources” published in the journal Haemophilia. Download full article
Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research. Download full article
Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal. Download full article