1140x400 hero

Our Top Stories

Research

Feature1 athn8

National Projects

Feature2 2020
  • Healthy People 2020 Report from Community Counts
    Comprehensive care works! Check out our new graphic report for data on the Healthy People 2020 (HP2020) measures for people with bleeding disorders.
  • ATHNdataset
    Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database.
  • ATHN Data Quality Counts
    This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset.

NHPCC

Feature3 casestudy
  • New Quality Improvement Case Study
    Learn about how the ATHN-affiliated HTC Western New York BloodCare is engaging patients and families to improve the transition from pediatric to adult care.
  • Patient Experience of Care Survey
    This survey is an important tool for capturing data and reporting on transition of care planning for the Healthy People 2020 DH-5 measure. ATHN encourages all HTCs to invite their patients to participate.
  • Action Guide
    Get the Action Guide for Improving Care for People with Bleeding Disorders—a go-to resource for national quality improvement focusing on the transition from pediatric to adult care.

Upcoming Events

3-5
OCT, 2019
2019 Bleeding Disorders Conference
Anaheim, CA
17-18
OCT, 2019
2019 ATHN Data Summit
Chicago, IL
5-8
NOV, 2019
NSGC 38th Annual Conference
Salt Lake City, UT

Featured Publications

“Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources” published in the journal Haemophilia. Download full article
ATHN 4
Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research. Download full article
NHPCC
Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal. Download full article