ATHN Data Summit 2022, October 19-21, 2022

Join Us for ATHN Data Summit 2022!

We’re excited to invite you to ATHN Data Summit 2022, where collaboration sparks innovation. Please mark your calendars and join us virtually October 19-21, 2022. At this year’s event, you can look forward to three days of insightful presentations and discussions as we reconnect and collaborate with each other.

Each year the Data Summit welcomes professionals from all ATHN-affiliated centers and our collaborating partners to come together—in the virtual space once again—and share ideas, celebrate accomplishments, and advance knowledge on behalf of the blood disorders community. It’s a time for all of us to shine!

ATHN Data Summit 2022 logo
Where collaboration sparks innovation and real-world evidence isnpires progress.

Be Part of ATHN Data Summit 2022 – Call for Abstracts
ATHN is seeking abstracts that showcase the important research currently being conducted by the staff and collaborating partners at ATHN-affiliated centers. All abstracts will be reviewed by ATHN, and if accepted, you will be asked to create a poster to present at the Data Summit. The abstract submission deadline is August 1, 2022.

To submit an abstract, the following criteria must be met:

  • At least one of the authors must be an ATHN-affiliated hemophilia treatment center (HTC) staff member or a collaborating partner.

Research projects and/or studies must fit into one of the following categories:

  • ATHN research projects– abstracts on methods, interim results, primary aims, secondary aims, or sub-studies
  • ATHNdataset– findings from queries or projects utilizing data from the ATHNdataset
  • ATHN government grant projects – abstracts focused on new data or program component results of interest to the wider community
  • Quality improvement (QI) projects – abstracts on QI initiatives that aim to measure and/or improve the quality of healthcare delivery within the U.S. HTC Network (USHTCN)
  • Industry Consortium, government, or community partner projects – abstracts that have a clear connection to ATHN research projects or federal grant deliverables
  • DREAM Award and CARE Award projects – abstracts/plans for poster or oral presentations as required by award contract
  • ATHN’s organization priorities – abstracts supporting projects such as expanding research capabilities and data quality initiatives

Abstract format should include the following information:

  • Title
  • Background
  • Aims
  • Methods
  • Results
  • Conclusions

Maximum length: 500 words (not including author details, titles, tables, and figures)

For previously presented posters, please submit a PDF version.

Submit your abstract to with the subject line “ATHN Data Summit Abstract.”

Abstracts must be submitted by August 1, 2022. ATHN will review abstracts and notify authors of acceptance by August 19, 2022.

Note: ATHN is inviting authors who have presented on ATHN projects at other conferences throughout past year to present their work again at ATHN Data Summit 2022.


Registration is free to attend ATHN Data Summit 2022, but you must be registered to receive the access link to the virtual event. Be on the lookout for a link to our registration portal coming soon!

2022 Event Highlights

From stimulating research presentations and discussions to exhibits and posters from our Industry Consortium, community partners, and other collaborators, ATHN Data Summit 2022 is sure to be packed with interesting and valuable content. We’ll be sharing the agenda as soon as it’s available, but in the meantime, here are some event highlights:

  • A focus on data quality, collection, analysis, and real-world evidence
  • Timely discussions on health equity in the study of blood disorders
  • The latest information on technological innovation and data acquisition
  • Coverage of ATHN Transcends, hemophilia, gene therapy, VWD, thrombosis, and other research updates
  • The ever-popular ATHN Leadership Awards

Thank You

As always, we are grateful to the ATHN Industry Consortium and Community Partners for their generous contributions and support. For any questions about the ATHN Data Summit, please contact

Thank you
to the ATHN Industry Consortium

Thank you
to our Community Partners