Welcome to ATHN Data Summit 2025

Each year, the ATHN Data Summit invites colleagues from our ATHN-affiliated centers, collaborating partners, and community-based organizations to come together, share discoveries, and celebrate progress on behalf of the rare disorders community.

ATHN Data Summit 2025 will take place virtually on our digital platform, not in Atlanta as previously announced. In addition, the event will now be happening October 21-23, 2025. The Pre-Conference for Data Managers will take place virtually on Monday, October 20.

ATHN looks forward to continuing to support, connect, and uplift our partners in 2025 — and plans to return to an in-person gathering in 2026.

We look forward to seeing you virtually October 21-23, 2025, for what is sure to be a successful virtual event.

Where Data Drives Discovery

Our theme for ATHN Data Summit 2025 is Where Data Drives Discovery. We’re excited to bring together leading experts in blood disorders research and top clinicians to share their perspectives through ground-breaking presentations, robust Q&A sessions, cutting-edge exhibits, and exclusive networking opportunities. Together, we’ll explore how ATHN’s unique data infrastructure supports research projects that leverage data to answer scientifically and clinically meaningful questions—and much more.

Get Ready for ATHN Data Summit 2025!

Be sure to add ATHN Data Summit 2025 to your calendar for October 21-23, 2025. Please note, our pre-conference for data managers will take place on October 20, 2025. As always, there is no registration fee, but registration is required.

Stay tuned for registration details and more information coming soon!

Thank You

As always, we are grateful for the generous contributions and support from the ATHN Industry Consortium and Community Partners.