National Hemophilia Program Coordinating Center
We’re helping to make the best care even better.
The NHPCC partners with over 135 ATHN Affiliate hemophilia treatment centers (HTCs), the National Hemophilia Foundation (NHF), the Hemophilia Federation of America (HFA), and other patient advocacy groups, federal government partners, the genetics and newborn screening collaborative, and thought leaders to guarantee a community-wide perspective.
Working with the 8 Health Resources and Service Administration (HRSA)-funded regional hemophilia networks (RHNs), the NHPCC collaborates to create value on a national scale. This involves aligning strategic efforts to increase capacity to deliver a continuum of high-quality, evidence-based, and culturally sensitive services and support.
The project is funded through the HRSA grant #UC8MC24079. Proposed future work will broaden and strengthen the NHPCC foundation for a more standardized, coordinated national network that will help ensure access to high-quality care for all persons with bleeding disorders, lower the cost of care, and improve the health of our population.
The work of the NHPCC will be evaluated based on feedback from stakeholders, including representatives from HRSA, members on the five work groups and regional leadership. The NHPCC is committed to continuing its work as a bridge among the 8 regional hemophilia networks to help create value on a national scale.
To learn more download the About the NHPCC brochure.