Grants & Awards

Data Quality Counts

Funding 8.1 Application Process is NOW CLOSED. The submission deadline was May 13, 2016.

This competitive award, supported in part by the Hemophilia Alliance, The Alliance Pharmacy and the Indiana Hemophilia and Thrombosis Center, is designed to build data management capacity at HTCs and enrich the ATHNdataset. Selection will be based on overall strength of the application, demonstration of the capacity to fulfill ATHN’s priorities, and a compelling financial need. For applicants with 340B programs more than two years old, please explain why funds are not available to support data manager staff. Successful applicants will receive an initial $2,500 for base funding upon receipt of their signed agreement and $50.00 per patient after the core data elements are entered into the ATHNdataset. NEW this cycle, payment will be increased to $100 per newly authorized patient with rare coagulation disorders that are enrolled in the ATHNdataset. (We encourage you to enroll these patients in the Community Counts Registry at the same time.) The funding cycle will cover the 12-month period beginning July 1, 2016.

Complete and accurate core data in the ATHNdataset continues to be the priority for this funding period. Enriching the ATHNdataset requires centers to:

  • Secure patient authorizations for the ATHNdataset. As in the previous cycles, all new patients with bleeding and thrombotic disorders are eligible. In this cycle, special funding has been dedicated to enrollment of patients with rare coagulation disorders.
  • Enter complete core data elements for those patients who have been authorized, including but not limited to those data elements that are used to calculate national, regional and HTC level quality metrics: primary bleeding disorder diagnosis, diagnosis baseline lab value, inhibitor diagnosis status, inhibitor titers, HIV and hepatitis diagnosis status, HCV viral load result, primary medication regimen for prophylaxis and episodic care, ITI regimen if applicable, insurance category type, insurance plans where possible, comprehensive care visit date, height and weight. Please refer to the updated list of ATHNdataset core data elements in the ATHN resource center, data collection and data quality section for details.
  • Perform data quality audits.

Eligibility

Applicant organizations must

  • be an ATHN Affiliate
  • use Clinical Manager

Application Process

The ATHN Data Quality Counts application process is an online process. All required documents for the application are listed below for your convenience.

For ease of completing the online application, an application template is available so you can prepare responses to the text sections in MS Word and then cut and paste your responses into the appropriate section of the online application. Click here for the application template.

Please be certain to submit all requested information including:

  • Online Application
  • Budget Request Form – available in the online application
  • ATHN Data Quality Counts Reference Report (not including patient names) – available in Clinical Manager

Download the application template.

Submission Deadline May 13, 2016. Estimated Award Start Date July 1, 2016.

Funding

Funding for ATHN Data Quality Counts in support of data management at Hemophilia Treatment Centers (HTCs) across the country is provided in part through the generosity of the Hemophilia Alliance, The Alliance Pharmacy and selected HTCs.

About ATHN

ATHN's mission is to provide stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical care and outcomes analysis as well as research, advocacy and public health reporting. ATHN Data Quality Counts is one ATHN program addressing that goal.

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