ATHN Data Summit 2017

Welcome to ATHN Data Summit 2017!

In 2017, ATHN embarks on another decade of inquiry and improvement on behalf of the bleeding disorders community—and we look forward to continuing the progress we’ve made together. As we build and strengthen our partnerships and collaboration, we bring HTC teams, investigators, federal partners, and funders together to fulfill our mission: to secure data, advance knowledge, and transform care. Join us at this year’s Data Summit for updates on ATHN’s ongoing projects and to find out what’s on the horizon.

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Who Attends

Data Summit offers our professional community members a unique opportunity to meet colleagues, share ideas, celebrate accomplishments, and collaborate to reach new goals. All ATHN-affiliated HTC staff, as well as community, government, and industry partners are invited to join us, including:

  • ATHN Affiliate medical directors and physicians, pediatric and adult hematologists
  • Nurse coordinators
  • Clinical team members (nurses, social workers, physical therapists, pharmacists, genetic counselors, etc.)
  • Data managers and study coordinators
  • HTC regional leadership


Join us in Chicago, October 19–20, 2017.

Registration begins at 9:00 a.m. and a welcome lunch reception begins at 11:00 a.m on Thursday, October 19, followed by the opening session at 1:00 p.m. The robust agenda concludes at 1:00 p.m. on Friday, October 20. Special pre-meeting educational sessions, as well as committee and work group meetings occur on Wednesday, October 18 in the afternoon and on Thursday, October 19 in the morning.

Registration Fee

There is no registration fee for ATHN Affiliates, government partners, community liaisons, and Industry Consortium members attending the ATHN Data Summit.

Register for ATHN Data Summit 2017!


Loews Chicago O’Hare Hotel
5300 N River Road
Rosemont, IL 60018
Loews Reservations Link: ATHN Data Summit 2017


Pre-Conference Meetings
October 18, 2017

1:00 p.m. – 3:00 p.m.

National Hemophilia Program Coordinating Center (NHPCC) Advisory Group (Invitation only)

3:15 p.m. – 6:15 p.m.

NHPCC Regional Leadership (Invitation only)

October 19, 2017

8:00 a.m. – 11:00 a.m.

Community Counts Science and Administrative Committees (Invitation only)

11:00 a.m. – 1:00 p.m.


9:00 a.m. – 12:00 p.m.

ATHN Committee Meetings (Invitation only)

  • Genetics Work Group

10:00 a.m. – 1:00 p.m.

ATHN Poster Session

11:30 a.m. – 12:30 p.m.

Authors with Posters

10:00 a.m. – 1:00 p.m.

ATHN Industry Consortium and Community Partner Exhibits

  • Novo Nordisk
  • Shire
  • Pfizer
  • CSL Behring
  • Bayer
  • Octapharma
  • The Hemophilia Alliance
  • Partners in Bleeding Disorders Education

10:00 a.m. – 11:00 a.m.

Clinical Manager Demonstration for Industry Partners (Invitation only)

11:00 a.m. – 12:00 p.m.

ATHN Committee Meetings (Invitation only)

  • Thrombosis Committee
  • Technology Committee
  • Finance Committee

11:00 a.m. – 12:00 p.m.

ATHN 101: An Overview of ATHN Projects

  • Designed for new HTC staff, first-time Data Summit attendees, and those interested in a refresher

11:00 a.m. – 1:00 p.m.

Welcome Reception and Lunch


General Session

1:00 p.m. – 1:10 p.m.

Opening Session – Welcome and Introductions

1:10 p.m. – 1:30 p.m.

State of ATHN

1:30 p.m. – 2:30 p.m.

Research Project Updates

  • ATHN 2: Factor Switching Study
  • ATHN 4: Transition of Care for Patients with VTE
  • My Life, Our Future

2:30 p.m. – 2:45 p.m.


2:45 p.m. – 4:00 p.m.

Inhibitors: Learning Through Surveillance and Research

  • Community Counts
  • Inhibitors and Previously Untreated Patients
  • Ensuring Data Quality

4:00 p.m. – 4:15 p.m.


4:15 p.m. – 5:30 p.m.


Track One: For Data Managers and Study Coordinators

  • Using ATHN Systems and Accessing ATHN Support

Track Two:

  • Quality Improvement at the HTCs: Successes and Challenges

Track Three: For Researchers

  • Learning More About ATHN Research Activities

6:30 p.m. – 9:00 p.m.

Networking Reception and Dinner

Presentation of ATHN Leadership Awards: Lusher-Shapiro Award and Trish Dominic Award

October 20, 2017

7:00 a.m. – 9:00 a.m.

ATHN Industry Consortium and Community Partner Exhibits

7:00 a.m. – 9:00 a.m.

ATHN Poster Session

7:00 a.m. – 9:00 a.m.

Breakfast Buffet

8:00 a.m. – 9:00 a.m.

Breakfast Breakouts

  • BB1: Focus on Rare Bleeding Disorders
  • BB2: ATHN 2: Factor Switching Study for Investigator Teams
  • BB3: ATHN Systems Training
  • BB4: Making the Most of Community Counts Data
  • BB5: ANCC Hemostasis Nurse Certification
  • BB6: ATHN 8: PUPS Study for Investigator Teams
  • BB7: My Life, Our Future
  • 9:00 a.m. – 9:15 a.m.

    Break, ATHN Poster Session, ATHN Industry Consortium and Community Partner Exhibits

    9:15 a.m. – 10:00 a.m.

    Working to Eradicate HCV

  • New Developments for Patients
  • Where Is the Science Going?
  • How to Structure a Process for Eradication: An HTC Case Study
  • 10:00 a.m. – 10:30 a.m.

    Break, ATHN Poster Session, ATHN Industry Consortium and Community Partner Exhibits

    10:30 a.m. – 11:30 a.m.


    • HRSA 2017 Cooperative Agreement
    • Developing Quality Improvement Capacity at the National Level
    • Future Direction of Quality Improvement
    • 340B Video

    11:30 a.m. – 12:00 p.m.

    ATHN Awards

    • ATHN Leadership Awards
    • The DREAM Awards (in collaboration HTRS)
    • The CARE Awards
    • Data Quality Counts

    12:00 p.m. – 12:50 p.m.

    A Look to the Future

    12:50 p.m. – 1:00 p.m.

    In Closing

    Post-Conference Meetings

    October 20, 2017

    1:00 p.m. – 2:30 p.m.

    ATHN Board of Directors Luncheon Acknowledging Industry Consortium (Invitation only)

    2:30 p.m. – 5:00 p.m.

    ATHN Board of Directors Meeting (Invitation only)

    Thank You

    We appreciate the generous contributions of the ATHN Industry Consortium.

    Register for ATHN Data Summit 2017!

    Founding Visionary Partner

    Novo Nordisk

    Visionary Partners


    Industry Supporters
    • Bayer Healthcare
    • CSL Behring
    • Octpharma
    • Pfizer Hemophila
    Industry Associate
    • Genentech
    • UniQure
    • Bio Products Laboratory (BPL)

    Loews Chicago O’Hare Hotel Accommodations

    Loews Reservations Link: ATHN Data Summit 2017

    Or call the Loews Chicago O’Hare Hotel reservation line and identify yourself as an attendee of the ATHN Data Summit 2017 when making your reservation. The toll-free number is 1-877-868-9134. To receive the conference rate of $215, you must make your reservation by September 26, 2017.


    Situated near the airport, this luxury hotel is within a 10-minute walk of Rosemont Theatre and Donald E. Stephens Convention Center. Rivers Casino and Allstate Arena are also within 3 miles.

    Hotel Features

    This smoke-free hotel features a restaurant, a nightclub, and a fitness center. Free WiFi in public areas and a free airport shuttle are also provided. Additionally, a bar/lounge, a coffee shop/café, and a 24-hour business center are onsite.

    Dining at the Loews Chicago O’Hare includes Mediterranean at Fresco 21, fresh seafood at McCormick & Schmick’s, and steaks at The Capital Grille. The Loews Chicago O’Hare also features the Art/Museo gallery showcasing rotating exhibits by local artists, and live music and comedy on stage in the Montrose Room.

    Room Amenities

    All 556 rooms provide free WiFi and free wired Internet, flat-screen TVs with cable channels, and conveniences like sitting areas and coffee makers. Other amenities available to guests include pillowtop beds, iPod docks, and 24-hour room service.

    Directions and Transportation

    O’Hare Ground Transportation

    Airport Shuttle
    Loews Chicago O’Hare is located just two miles from the airport and offers a complimentary airport shuttle to all guests. The shuttle also serves the nearby CTA station.

    Please note: O’Hare Airport will be undergoing maintenance/renovation starting May 1, 2017 and lasting 6 months. During that time, the Loews shuttle will only be able to drop off guests at the airport at the “shuttle drop off/pick up area”. Previously, guests going to the airport from the Loews Chicago O’Hare would be dropped off at their individual gates. Sadly this won’t be possible during this period. Given the size of the airport, guests should allow extra time to get to their gates as they will need to walk over from the shuttle area. This change affects all airport hotel shuttles, not just our own. 

    Where to Catch the Shuttle from the Airport to Loews Chicago O’Hare
    • For domestic flights, pick up is at the Hotel Shuttle Center, Door #2. Exits to the shuttle center are located by baggage claim. Follow the red Shuttle Center signs.
    • For all International flights or for domestic flights between 1 AM and 4 AM, please call 847-544-5300 to arrange for service.
    Bus/Shuttle Center

    The Bus/Shuttle Center is where you can catch regional buses, our airport-hotel shuttle and other hotel courtesy buses. Parking shuttles and airport rental car agencies are also located here.

    Airport Transit System

    The ATS is a free rail system operating between the domestic terminals, the international terminal and long-term parking lots. The service runs 24 hours.

    Rental Cars

    Rental car agencies can be found near the baggage claim areas of Terminals 1, 2, and 3 on the airport’s lower level.

    Taxi Cabs

    Shared ride service is available and taxicabs can be located on a first come, first serve basis at the lower level curb front of all terminals.

    For more information, visit Getting To and From O’Hare.

    Local Attractions
    MB Financial Park at Rosemont

    Located with walking distance (0.48 miles) of the Loews Chicago O’Hare Hotel, MB Financial Park at Rosemont is a 200,000 square-foot entertainment and dining complex that opened in 2012 and is home to 12 venues offering upscale international cuisine, live music, comedy, state-of-the-art film, bowling and more. This new entertainment district is a one stop suburban destination for big city dining, entertainment, nightlife, and family fun. The common area is used for various outdoor seasonal activities, including a climate controlled NHL sized ice rink that is erected in the winter months for Skating in the Park. Visit MB Financial Park at Rosemont for more details.

    Also visit area attractions in Chicago for more information.

    Register for ATHN Data Summit 2017!

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