News & Events

Welcome to the ATHN Data Summit 2011 presentations page. You may quickly view any of the presentations by using the Quickview option or make your selection by clicking the checkbox on each and downloading below.

General Session - Thursday

The State of ATHN

Diane Aschman,MS

President and CEO,American Thrombosis and Hemostasis Network

General Session - Thursday

Building the ATHNdataset - What's In It; What's Not

David Green,MD,PhD

Northwestern University School of Medicine,Northwestern Center for Bleeding Disorders

General Session - Thursday

ATHNadvoy: Patient Reported Outcomes

Michael Tarantino,MD

Bleeding and Clotting Disorders Institute

General Session - Thursday

Data Quality: Lessons Learned with Self Audits

Anne Neff,MD

Vanderbilt University Medical Center

General Session - Thursday

Synchronizing the Network and Information Infrastructure to Meet Future Public Health Needs: CDC Strategic Direction

Althea Grant,PhD

DHHS/CDC/CCHP/NCBDDD/DBD

General Session - Thursday

Life After WebTracker Migration: Reaping the Benefits

Pam Bryant

Emory / Children's Healthcare of Atlanta Comprehensive Hemophilia Program

General Session - Friday

MCHB Strategic Direction

Kathryn McLaughlin,MPH

National Hemophilia Program,MCHB/DSCSHN/Genetic Services Branch

General Session - Friday

Hemophilia Data Set (HDS)

John Drake,RN,MS and Judith Baker,MHSA

Gulf States Hemophilia and Thrombophilia Center and Children's Hospital of Orange County

General Session - Friday

Rare Coagulation Disorders

Amy Shapiro,MD

Indiana Hemophilia and Thrombosis Center

Breakout Session 1:

For Physicians and Researchers

Cohort Study Priorities

Ellis Neufeld, MD

Children's Hospital Boston

Breakout Session 2:

For Nurses and Other Clinicians

Research Opportunities

Jan Kuhn,BSN

Central Virginia Center for Coagulation Disorders / Virginia Commonwealth University

Breakout Session 2:

For Nurses and Other Clinicians

ATHNdataset – Proposed Core Data Elements

Ann Forsberg,MA,MPH

UMASS Memorial Hospital

Breakout Session 3:

For Non-clinician Data Managers

Hemophilia 101

Brenda Riske,MS MBA MPA and Regina Butler,RN

University of Colorado Denver Hemophilia and Thrombosis Center and Children's Hospital of Philadelphia

Breakout Session 4:

For HTC Teams

Improvements in Promoting ATHNadvoy with Patients

Kati Keebaugh

American Thrombosis & Hemostasis Network

Breakout Session 4:

For HTC Teams

Improvements in Promoting ATHNadvoy with Patients

Judy Kauffman,RN

Children's Mercy Hospital