ATHN CV: Peer-Reviewed Publications

A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network (ATHN) Cohort
Authors: Haley K, Sidonio R, Abraham S, Cheng D, Recht M, Roshni K Journal of Women’s Health, 2020 May; 29(5): 670–676.

Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres
Authors: Soucie J, Miller C, Dupervil B, Le B, Buckner T Haemophilia, 2020 May; 26(3):487-493.

The Impact of Extended Half-Life Factor Concentrates on Prophylaxis for Severe Hemophilia in The United States
Authors: Malec L, Cheng D, Witmer C, Jaffray J, Kouides P, Haley K, Sidonio R, Johnson K, Recht M, White G, Croteau S, Ragni M American Journal of Hematology, 2020 April; 95(8).

Characterizing the Use of DOAC in Children Using the American Thrombosis and Hemostatsis Network Dataset (ATHNdataset)
Authors: Davila J, Cheng D, Raffini L, Thornburg C, Corrales-Medina F Blood, 2019 November; 134(Supplement_1):1156.

Assessing the Safety of Various Von Willebrand Factor Regimens in Patients with Clinically Severe VWD: A Natural History Study
Authors: Sidonio R, Cheng D, Watson C, Weyand A Blood, 2019 November; 134(Supplement_1):1132.

Deaths Associated with Emicizumab in Patients with Hemophilia A – Letter to the Editor
Authors: Buckner T, Watson C, Recht, M New England Journal of Medicine, 2019 November; 381:1878-1879.

Potential of the Community Counts registry to characterize rare bleeding disorders
Authors: Gupta S, Acharya S, Roberson C, Lail A, Soucie JM, Shapira A Haemophilia, 2019 November; 25(6):1045-1050.

Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States
Authors: Malouin R, Mckernan L, Forsberg A, Cheng D, Drake J, McLaughlin K, Trujillo M Maternal and Child Health Journal 2018 September;22(9): 1240-1246.

A cross-sectional analysis of cardiovascular disease in the hemophilia population
Authors: Sood S, Cheng D, Ragni M, Kessler C, Quon D, Shapiro A, Key N, Manco-Johnson M, Cuker A, Kempton C, Wang TF, Eyster ME, Kuriakose P, von Drygalski A, Cox Gill J, Wheeler A, Kouides P, Escobar M, Leissinger C, Galdzicka S, Corson M, Watson C, and Konkle B Blood Advances 2018 June;2(11): 1325-1333.

Evolution of a National Surveillance System for Bleeding Disorders
Authors: Manco-Johnson M, Byams V, Recht M, Dudley B, Dupervil B, Aschman D, Oakley M, Kapica S, Voutis M, Humes S, Kulkarni R, Grant AM, USHTCN American Journal of Hematology 2018 June, Vol 93, Issue 6. e-only article 2018 February 23

Genotypes, phenotypes and whole genome sequence: Approaches from the My Life, Our Future haemophilia project
Authors: Konkle B, Johnsen JM, Wheeler M, Watson C, Skinner M, Pierce GF Haemophilia 2018 May;24(56): 87-94.

Transition of care for patients with venous thromboembolism: Rationale, design and implementation of a quality intervention project conducted at American Thrombosis and Hemostasis Network (ATHN) affiliated sites
Authors: Jaffray J, Rajpurkar M, Sharathkumar A, Patel K, Munn J, Cheng D, McCarthy E, DeSancho M Thrombosis Research 2018 February;163: 146-152.

Radionuclide synovectomy/synoviorthesis (RS) in patients with bleeding disorders: A review of patient and procedure demographics and functional outcomes in the ATHNdataset.
Authors: McGuinn C, Cheng D, Aschman D, Carpenter SL, Sidonio R, Soni A, Tarantino MD, Wheeler AP, Dunn AL, ATHN3 Working Group. Haemophilia. 2017 Aug 24. doi: 10.1111/hae.13318. [Epub ahead of print]

Radionuclide Synovectomy/Synoviorthesis (RS) in Persons with Bleeding Disorders: A Review of Impact of National Guidance on Frequency of RS using the ATHNdataset
Authors: Sharma, R, Dunn, A, Aschman, D, Cheng, D, Wheeler, A, Soni, A, McGuinn, C, Knoll, C, Stein, DT, Young, G, French, J, Sanders, J, Davis, JA, Tarantino, M, Lim, M, Gruppo, R, Sidonio, R, Ahuja, S, Carpenter, S, Pipe, S, Shapiro, A Haemophilia. 2017 Jul; 23(4):e385-e388. Epub 2017 May 24.

Novel approach to genetic analysis and results in 3000 hemophilia patients enrolled in the My Life, Our Future initiative
Authors: Johnsen JM, Fletcher SN, Huston H, Roberge S, Martin BK, Kircher M, Josephson NC, Shendure J, Ruuska S, Koerper MA, Morales J, Pierce G, Aschman DJ, Konkle B Blood Advances 2017 May;1(13):824-834.

Genetic Analysis of Bleeding Disorders
Edison E, Konkle BA, Goodeve AC Haemophilia (2016), 22 (Supp.5), pg. 79.

National Needs Assessment of Patients Treated at the United States Federally Funded Hemophilia Treatment Centers
Authors: Butler RB, Cheadle A, Aschman DJ, Riske B, Senter S, McLaughlin K, Young G, Ahuja S and Forsberg A Haemophilia 2015 1-7 DOI:10:111/hae.12810..

Hemophilia and Von Willebrand Disease Patients’ Perceptions of Care at US Hemophilia Treatment Centers
Authors: Aschman DJ on behalf of the NHPCC Needs Assessment Working Group, Shapiro AD, Butler RD, Sharathkumar A, Skinner M and Forsberg A Haemophilia (2014), 2 (Suppl.2), pg. 13. Based upon presentation at the 7th Annual Congress of the European Association of Haemophilia and Allied Disorders, Brussels, Belgium, February 26-28, 2014.

The ATHNdataset: A Community Resource for Outcomes Analysis, Public Health Surveillance and Research
Authors: Konkle B, Abshire T and Aschman D on behalf of the American Thrombosis and Hemostasis Network Affiliates American Journal of Hematology (2012), 87 (Suppl.1), pg. S159-60. Based upon presentation poster at Thrombosis and Hemostasis Summit of North America Scientific Meeting, Chicago IL, April 29, 2012.

The ATHNdataset: A U.S.-Based Dataset for Outcomes Analysis, Public Health Surveillance and Research
Authors: Konkle B, Abshire T and Aschman D on behalf of the American Thrombosis and Hemostasis Network Affiliates Haemophilia (2012), 18 (Suppl.1), pg. 27. Based upon presentation poster at the 5th Annual Congress of the European Association of Haemophilia and Allied Disorders, Rome, Italy, February 22-24, 2012.

Establishing Community-Based Partnerships to Create a Standards-Based Information Infrastructure
Authors: Aschman DJ, Abshire TC, Shapiro AD, Lusher JM, Forsberg AD and Kulkarni R American Journal of Preventive Medicine (2011, December), (Suppl.4), pg. 332-337.

Knowledge and Therapeutic Gaps: A Major Public Health Problem Highlighted in the Rare Coagulation Disorders
Authors: Shapiro A, Soucie JM, Peyvandi, F, Aschman DJ, DiMichele DM on behalf of the UDC Rare Bleeding and Clotting Disorders Working Group and the European Network of Rare Bleeding Disorders Database American Journal of Preventive Medicine (2011, December) (Suppl.4), pg. S324-331.