We're helping to make the best care even better.
Bleeding disorders affect millions of people in the U.S. and impact all ages, races, and socioeconomic groups. In 2012, the National Hemophilia Program Coordinating Center (NHPCC) was established to identify gaps in services, standardize and improve access to care, and share best practices—with the ultimate goal of making the best care even better.
The NHPCC partners with over 135 ATHN Affiliate hemophilia treatment centers (HTCs), the National Hemophilia Foundation (NHF), the Hemophilia Federation of America (HFA), and other patient advocacy groups, federal government partners, the genetics and newborn screening collaborative, and thought leaders to guarantee a community-wide perspective.
Working with the 8 Health Resources and Service Administration (HRSA)-funded regional hemophilia networks (RHNs), the NHPCC collaborates to create value on a national scale. This involves aligning strategic efforts to increase capacity to deliver a continuum of high-quality, evidence-based, and culturally sensitive services and support.
The project is funded through the HRSA grant #UC8MC24079. Proposed future work will broaden and strengthen the NHPCC foundation for a more standardized, coordinated national network that will help ensure access to high-quality care for all persons with bleeding disorders, lower the cost of care, and improve the health of our population.
The work of the NHPCC will be evaluated based on feedback from stakeholders, including representatives from HRSA, members of the NHPCC committees and work groups, and regional leadership. The NHPCC is committed to continuing its work as a bridge among the 8 regional hemophilia networks to help create value on a national scale.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers' grant #UC8MC24079 for $800,000. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.