ATHN CV: Peer-Reviewed Poster Presentations

A Survey of F8 and F9 Variants in My Life, Our Future for Evidence of Alternative Splicing in Hemophilia
Authors: Johnsen JM, Kircher M, Fletcher SN, Huston H, Lannert K, Roberge S, Martin BK, Josephson NC, Shendure J, Ruuska S, Koerper MA, Morales J, Pierce G, Aschman DJ, Konkle B International Society on Thrombosis and Hemostasis (ISTH) Congress, July 8-13, 2017, Berlin, Germany

ATHN 2: Factor Switching Study A Real-World Assessment of New Coagulation Factors through the American Thrombosis and Hemostasis Network (ATHN): ATHN 2 Factor Switching Study
Neufeld, EJ, Journeycake, JM, Aschman DJ, Cheng, D, McCarthy, EG, Watson, CD and the ATHN 2 Steering Committee HTRS 2017 Scientific Symposium, April 6-8, 2017, Scottsdale, AZ

ATHN 4: Transition of Care for Patients with VTE Transition of Care for Patients with Venous Thromboembolism: A Quality Improvement Project with the American Thrombosis and Hemostasis Network
Jaffray, J, DeSancho, M, Munn, JE, Watson, CD, McCarthy, EG and Rajpurkar, M HTRS 2017 Scientific Symposium, April 6-8, 2017, Scottsdale, AZ

National Survey of the 340B Drug Pricing Program: Quantitative Evaluation of the Services Provided by the U.S. Hemophilia Treatment Centers
Authors: Trujillo M, Forsberg AD, Drake J, Cheng D, McLaughlin K, McKernan L World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community
Authors: Malouin R, Bergstrom K, Heiman M, Paulyson Nunez K, Forsberg A and the NHPCC Genetics Working Group World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

Genetic Variant Analysis in Children and Adults with Hemophilia: Experience from a Large Hemophilia Center in the US
Authors: Lemons J, Escobar M, Cantini M, Cannon K, Brown D, Nguyen T and Rodriguez N, The University of Texas Health Science Center at Houston, Houston, TX, USA World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

Joint Outcomes in United States (U.S.) Hemophilia Patients: A Report of the Community Counts Registry
Authors: Manco-Johnson M, Recht M, Kulkarni R, Dupervil B, Byams B, Dudley B, Aschman D, Voutsis M, Humes S, Oakley M World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

A “Genotyping Day” to Facilitate Efficient Enrollment for a National Project
Authors: Smith J, Hatcher N, Martinez R, Balasa V, Hemophilia Treatment Center, Valley Children’s Hospital, Madera, California World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

A Cross-Sectional Study of Females with Congenital Bleeding Disorders Enrolled in the ATHNdataset
Authors: Authors: Haley K, Sidonio R, Cheng D, Shapiro A, Manco-Johnson M, Aschman D, Recht M World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.

Radionuclide Synovectomy/Synoviorthesis (RS) in Patients with Bleeding Disorders: A Review of Demographics and Procedure-Related Outcomes from the ATHNdataset
Authors: Lim M, Aschman D, Ahuja S, Carpenter S, Cheng D, Davis JA, French J, Gruppo R, Knoll C, McGuinn C, Pipe S, Sanders J, Shapiro A, Sidonio R, Soni A, Stein DT, Tarantino MD, Wheeler A, Young G, Dunn A Thrombosis and Hemostasis Societies of North America, Chicago, IL April 14-16, 2016.

Analysis of F8 And F9 Variants in the First 3000 Hemophilia A and B Patients in the My Life, Our Future (MLOF) Project
Authors: Konkle B, Johnsen JM, Ruuska S, Koerper MA, McAllister S, Aschman DJ Thrombosis and Hemostasis Societies of North America (THSNA) Summit, April 14-16, 2016, Chicago, IL

Radionuclide Synovectomy/Synoviorthesis in Patients with Bleeding Disorders: A Review of Malignancy and Myeloproliferative Neoplasms from the ATHNdataset
Authors: Sharma R, Dunn AL, Cheng D, Ahuja S, Aschman D, Carpenter S, Davis J, French J, Gruppo R, Knoll C, Lim M, McGuinn C, Pipe S, Sanders J, Sidonio R, Soni A, Stein D, Tarantino M, Wheeler A, Young G, Shapiro A Thrombosis and Hemostasis Societies of North America, Chicago, IL April 14-16, 2016.

Radionuclide Synovectomy/Synoviorthesis (RS) in Patients with Bleeding Disorders: A Review of Effect of Seminal Publications on Frequency of RS using the ATHNdataset
Authors: Haley K, Sidonio R, Cheng D, Shapiro A, Manco-Johnson M, Aschman D, Recht M Thrombosis and Hemostasis Societies of North America, Chicago, IL April 14-16, 2016.

New Hemophilia Treatment Center Staff Orientation: A Standardized Approach
Authors: Droze K, Packman J, Forsberg A, Butler

Lessons Learned from the Development of an Educational Curriculum for Potential and Confirmed Female Carriers of Hemophilia
Author: Butler R, Alabek M, Deery D, Miller K, Cutter S National Society of Genetic Counselors 3rd National Education Conference, Pittsburgh, PA, October 23, 2015. (Project of National Significance funded by the NHPCC through HRSA grant #UC8MC24079)

My Life, Our Future: A “Genotyping Day” to Facilitate Efficient Enrollment
Authors; Smith J, Hatcher N, Patterson F, Ruthrolen M, and Balasa V National Hemophilia Foundation 67th Annual Meeting, Dallas, TX, August 13-15, 2015. (Collaborating investigator team in My Life, Our Future)

Expanding Telemedicine to Medical Homes for Comprehensive Care Delivery for Persons with Hemostatic Disorders: A Pilot Study of the American Thrombosis and Hemostasis Network (ATHN)/National Hemophilia Program Coordinating Center (NHPCC)
Authors: Kulkarni R, Malouin R, Vallad-Hix C, Carlson L, Bird M, Aschman D, Forsberg A, Trost Z and Greenhoe R International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada, June 23, 2015. (Project of National Significance funded by the NHPCC through HRSA grant #UC8MC24079)

U.S. Surveillance of Prophylaxis Use Among Persons with Hemophilia A Receiving Care at Hemophilia Treatment Centers (HTCs)
Authors: Manco-Johnson M, Byams V, Cooke B, Recht M, Aschman D, Dudley B, Voutsis M and Oakley, M International Society of Thrombosis and Haemostasis, (ISTH) 2015 Congress, Toronto, Canada, June 23, 2015. (Award winning!)

A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population
Authors: Sood SL, Cheng D, Shapiro AD, Kessler CM, Key NS, Quon DV, Eyster E, Manco-Johnson MJ, Kempton CL, Fogarty PF, Ragni MV, Gill J, Kuriakose P, von Drygalski A, Kouides PA, Escobar MA, Ne AT, Wang TF, Leissinger CA, Galdzicka S and Konkle BA American Society of Hematology 56th Annual Meeting, San Francisco, CA, December 6-9, 2014.

A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population
Authors: Sood SL, Cheng D, Shapiro AD, Kessler CM, Key NS, Quon DV, Eyster E, Manco-Johnson MJ, Kempton CL, Fogarty PF, Ragni MV, Gill J, Kuriakose P, von Drygalski A, Kouides PA, Escobar MA, Neff AT, Wang TF, Leissinger CA, Galdzicka S and Konkle BA American Society of Hematology 56th Annual Meeting, San Francisco, CA, December 6-9, 2014.

My Life, Our Future: A Multi-Sector Collaboration to Provide Genotyping Services and a Research Repository for the Hemophilia Community Expands from Pilot to National Program
Authors: Aschman DJ, Koerper M, Ruuska S, McAlister S, Eyster E, Baker L, Tarantino M, Gonzales S and Konkle B American Public Health Association, New Orleans, LA, November 16-19, 2014.

Hemophilia Genotyping Results from the My Life, Our Future Project
Aschman D, Eyster E, Pipe S, Tarantino M, Shapiro A, Kempton C, Ruuska S, McAlister S, Bias V, and Konkle BA National Hemophilia Foundation 66th Annual Meeting, Washington, DC, September 18-20, 2014.

Community Counts: A US National Surveillance System for Bleeding and Clotting Disorders
Authors: Manco-Johnson M, Dudley B, Oakley M, Recht M, Kapica S, Presley RJ, Byams V, Cooke B and Aschman DJ World Federation of Hemophilia, Melbourne, Australia, May 11-15, 2014.

Patients’ Perceptions of Care at the US Federally Funded Hemophilia Treatment Centers
Authors: Forsberg, A, Butler RB, Cutter S, Curtis R, Shapiro AD, Sharathkumar A and Aschman DJ World Foundation of Hemophilia 2014 World Congress, Melbourne, Australia, May 11-15, 2014.

Community Counts: A US National Surveillance System for Bleeding and Clotting Disorders
Authors: Manco-Johnson M, Dudley B, Oakley M, Recht M, Kapica S, Presley RJ, Byams V, Cooke B and Aschman DJ World Federation of Hemophilia, Melbourne, Australia, May 11-15, 2014.

Hemophilia Genotyping Results from the My Life, Our Future Project: An Update
Authors: Konkle BA, Tarantino M, Eyster E, Pipe S, Ruuska S, Shendure J, Johnsen J, McAlister S, Bias V, Pierce GF and Aschman D, Thrombosis and Hemostasis Summit of North America Scientific Meeting, Chicago, IL, April 10-12, 2014.

Community Counts: Preliminary Report of a National Surveillance System for Bleeding and Clotting Disorders
Authors: Manco-Johnson M, Dudley B, Oakley M, Recht M, Kapica S, Presley RJ, Byams V, Cooke B and Aschman DJ Thrombosis and Hemostasis Summit of North America Scientific Meeting, Chicago, IL, April 10-12, 2014.

Technical Assistance Needs to Support Care Delivery for Patients with Bleeding Disorders: Findings from a National Survey of Hemophilia Treatment Centers
Authors: Bellinger JD, Iyer MR, Martin A, Aschman DJ and Forsberg A Academy Health, 2014.

My Life, Our Future: A Multi-Sector Partnership to Generate Genotype and Research Data Within the Hemophilia Community
Authors: Keebaugh K, Koerper M, Frick N, McAlister S and Aschman DJ American Public Health Association Annual Meeting, Boston, MA, November 4, 2013.

Utilizing National Electronic Data Infrastructure to Longitudinally Follow the United States (US) Bleeding Disorders Population
Authors: Manco-Johnson M, Dudley B, Oakley M, Recht M, Kapica S, Byams V, Cooke B and Aschman DJ American Public Health Association Annual Meeting, Boston, MA, November 4, 2013.

Survey of the Support Needs of the HTC Staff by National Hemophilia Program Coordinating Center
Authors: Forsberg A, Butler B, McLaughlin K, Baker J, Oldfield D and Aschman D National Hemophilia Foundation Annual Meeting, Anaheim, CA, October 3-5, 2013.

The ATHNdataset: A Growing Resource for Outcomes Analysis
Authors: Konkle B, Neufeld E, and Aschman D on behalf of the American Thrombosis and Hemostasis Network Affiliates Hemostasis and Thrombosis Research Society, Chicago, IL, June 14, 2013.

My Life, Our Future: A Multi-Sector Collaboration to Provide Genotyping Services and a Research Repository for the Hemophilia Community
Authors: Konkle B, Aschman DJ, Bias V and Pierce G American Public Health Laboratories Newborn Screening Symposium, Atlanta, GA, May 5-10, 2013.

The ATHNdataset: A Collaborative Effort to Build a National Standardized Data Source from Within the Hemostasis and Thrombosis Community
Authors: Konkle B, Abshire T and Aschman D on behalf of the American Thrombosis and Hemostasis Network Affiliates National Hemophilia Foundation Annual Meeting, Orlando, FL, November 8-10, 2012.

ATHNadvoy: A Collaborative and Community-Driven Approach for Innovation in Electronic Bleed and Infusion Logging Technology
Authors: Watson C and Keebaugh K with ATHNadvoy Beta-Testers National Hemophilia Foundation Annual Meeting, Orlando, FL, November 8-10, 2012.

Adopting a Standards-Based Information Infrastructure for Rare Disorder Communities
Authors: Baker JR and Aschman DJ on behalf of ATHN American Public Health Association, October 25-29, 2008.

Adopting a Standards-Based Information Infrastructure for Rare Disorder Communities
Authors: Baker JR and Aschman DJ on behalf of ATHN American Public Health Association, October 25-29, 2008.

A Standards-Based Information Infrastructure for Rare Bleeding and Clotting Disorders
Authors: Forsberg A, Parker LH, Thomas J and Aschman DJ on behalf of ATHN American Public Health Association, San Diego, CA, October 25-29, 2008.

American Thrombosis and Hemostasis Network: Expanding Capacity for Electronic Data Management
Author: Aschman DJ World Federation of Hemophilia, Istanbul, Turkey, June 1-5, 2006

American Thrombosis and Hemostasis Network: Expanding Capacity for Electronic Data Management
Author: Aschman DJ World Federation of Hemophilia, Istanbul, Turkey, June 1-5, 2006.