Reporting HP2020 quality indicators related to blood disorders.
In 2010, the U.S. Department of Health and Human Services launched Healthy People 2020 (HP2020), an initiative designed to help the U.S. population live longer, healthier lives. HP2020 tracks many different health topic areas, including blood disorders and blood safety.
The NHPCC collaborates with the 8 regional hemophilia networks, the Health Resources and Services Administration (HRSA), the Centers for Disease Control and Prevention (CDC) and the National Heart, Lung and Blood Institute (NHLBI) to report on blood disorder-specific measures as part of the HP2020 national agenda for improving health in the United States.
For first time, HP2020 measures were added specifically for people with hemophilia. These measures are significant because they make blood disorders a recognized national health priority.
The following HP2020 quality indicators have been established as national blood disorder measures that are reported on an annual basis nationally through HRSA:
- BDBS-15 Von Willebrand Disease
- BDBS-16 Joint Disease
- BSBS-8 High School Completion
- AH-5.6 Absenteeism
- DH-5 Transition Planning
BDBS-15 and BDBS-16 are HP2020 measures reported to HRSA for public access. The other measures are reported using a hemophilia-specific dataset directly to HRSA.