DH-5 Transition Planning

Measure: Increase the proportion of youth with special health care needs whose provider has discussed transition of care planning from pediatric to adult healthcare.

Data Source – Baseline: National Patient Needs Assessment conducted in 2013
Subsequent measures: Patient Experience Survey

2013 Baseline – Talked about Transition: 68%
2013 Baseline – Encouraged Independence: 83%
2016 Most Recent Result – Talked about Transition: 89.8%
2016 Most Recent Result – Encouraged Independence: 92.5%

Calculation:
This measure is defined by the response of parents of children 12-17 years and young adults 18-22 years to two questions:

Question 1: Has the HTC staff talked with the patient about how to care for the bleeding disorder as he or she becomes an adult?
Used for calculation of "Talked about Transition".
Numerator: The number of parents of children 12-17 years and patients 18-22 years who responded yes to question 1.
Denominator: The total number of parents of children 12-17 years and patients 18-22 years who responded to the question 1.

Question 2: Has the HTC encouraged this person to become more independent in managing the bleeding disorder?
Used for calculation of "Encouraged Transition".
Numerator: The number of parents of children 12-17 years and patients 18-22 years who responded yes to question 2.
Denominator: Total number of parents of children 12-17 years and patients 18-22 years who responded to the question 2.

2013 Conclusion: 68% of patients and parents talked with HTC staff about transition; 83% of patients and parents perceived that the HTC encouraged independence in the managing bleeding disorders.

2015 Conclusion: 89.9% of patients and parents talked with HTC staff about transition; and 92.5% of patient and parents perceived that the HTC encouraged independence in managing bleeding disorders.

Help us learn more about transition from pediatric to adult care by completing the Patient Experience Survey if you are a parent of a child 12-17 or a patient 18-22. Ask your HTC to learn more.