BDBS-15 Von Willebrand Disease

Measure: Increase the number of persons with von Willebrand disease (VWD) who are seen in specialty care centers by 21 years.

Data Source: Community Counts, CDC Public Health Surveillance in Bleeding Disorders Patient Registry, HTC Population Profile

2012 Baseline: 4,525
2015 Most Recent Results: 9,913

Calculation: 2012 Baseline

Gender

Age Category

Greater than 21

Less than 21

Total

Female

1,533

2,541

4,074

23.65

39.20

62.85

Male

424

1,984

2,408

6.54

30.61

37.15

Total

1,957

4,525

6,482

30.19

69.81

100

2012 Baseline: The number of unique VWD patients in HTC Population Profile who sought care in 2012 and were 21 or under = 4,525

2013 and Beyond: The number of unique VWD patients in the HTC Population Profile at baseline plus the cumulative additional unique VWD patients each subsequent year. 

2015 Conclusion: The number of persons with VWD seen in specialty care centers by the age of 21 years has increased steadily from 4,525 in 2012 to 9,913 in 2015.

BDBS SUB-Measure 1: Increase the number of female VWD unique patients 21 years and younger that are seen in specialty centers relative to the male population of VWD patients 21 years or younger over time. 

Data Source: Community Counts, CDC Public Health Surveillance in Bleeding Disorders Patient Registry, HTC Population Profile

2012 Baseline – Female: 2,541
2012 Baseline – Male: 1,984

Calculation: 2012

Gender

Age Category

Greater than 21

Less than 21

Total

Female

1,533

2,541

4,074

23.65

39.2

62.85

Male

424

1,984

2,408

6.54

30.61

37.15

Total

1,957

4,525

6,482

30.19

69.81

100

2012 Baseline: There are 2,541 unique females seen at the specialty center compared to 1984 males. The ratio is 1.28 unique females to every male. Females equal cumulative number of females with VWD less than 21years seen at specialty centers.    

Males equal cumulative number of males with VWD less than 21years seen at specialty centers.    

Ratio: Numerator is the cumulative number of females with VWD less than 21 years seen at specialty centers.    

Denominator is cumulative number of males with VWD less than 21years seen at specialty centers.    

Substitute 2015 data

BDBS SUB-Measure 2: Maintain or increase the proportion of unique patients 21 years or younger relative to the total population of VWD over time.

2012 Baseline: 69.8%

Calculation: Baseline 2012
Numerator: The number of unique VWD patients in the HTC Population Profile who sought care in 2012 (or subsequent years) and were 21 or under: 4525
Denominator: The number of unique VWD patients in the HTC Population Profile who sought care in 2012 (or subsequent years): 6482

Gender

Age Category

Greater than 21

Less than 21

Total

Female

1,533

2,541

4,074

78.33

56.16

62.85

Male

424

1,984

2,408

21.67

43.84

37.15

Total

1,957

4,525

6,482

30.20%

69.8%

100%

Most Recent Year – 2015

Year

Age Category

 

# Greater than 21
%

# Less than 21
%

Total
%

2012 (Baseline)

1,957

4,525

6,482

 

30.20%

69.80%

100%

2013

2,907

6,689

9,596

 

30.30%

69.70%

100%

2014

3,458

7,904

11,362

 

(30.43%)

69.57%

100%

2015

Ned results

 

 

 

 

 

100%

2015 Conclusion: The proportion of unique patients 21 years or younger in 2015 is 69.57% compared to 69.80% during baseline year 2012.