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ATHN Data Summit 2016 Presentations

Welcome to the ATHN Data Summit 2016 presentations page. You may quickly view any of the presentations by using the Quickview option or download the presentations by selecting the download button at the end of the list below.

General Session - Thursday PM Sidonio panel
The ATHNdataset – Building from Where We Started Introduction
The ATHNdataset – Building from Where We Started Introduction
Robert Sidonio, MD, Moderator
Emory / Children's Health of Atlanta Comprehensive Hemophilia Program
General Session - Thursday PM Sidonio panel
The ATHNdataset – Building from Where We Started: Understanding More About Females with Bleeding Disorders
The ATHNdataset – Building from Where We Started: Understanding More About Females with Bleeding Disorders
Kristina Haley, DO
Oregon Health & Science University
General Session - Thursday PM Sidonio panel
The ATHNdataset – Building from Where We Started: Use of Orthopedic Surgical Interventions in Persons with Hemophilia
The ATHNdataset – Building from Where We Started: Use of Orthopedic Surgical Interventions in Persons with Hemophilia
Tyler Buckner, MD, MSc
University of Colorado Denver Hemophiia and Thrombosis Center
General Session - Thursday PM Sidonio panel
The ATHNdataset – Building from Where We Started:Diagnosis of Persons with VWD
The ATHNdataset – Building from Where We Started:Diagnosis of Persons with VWD
Megan Sampson, MD
Children's Hospital Medical Center of Akron
General Session - Thursday PM Sidonio panel
The ATHNdataset – Building from Where We Started Introduction Closing Remarks
The ATHNdataset – Building from Where We Started Introduction Closing Remarks
Robert Sidonio, MD
Emory / Children's Health of Atlanta Comprehensive Hemophilia Program
General Session - Thursday PM Hauke panel
ATHN Data Matters
ATHN Data Matters
Norma Wolf, MBA, MSN, RN
American Thrombosis and Hemostasis Network
General Session - Thursday PM Hauke panel
Community Counts – A Look at Inhibitors in the Registry for Bleeding Disorders
Community Counts – A Look at Inhibitors in the Registry for Bleeding Disorders
Marilyn Manco-Johnson, MD, Vanessa Byams, MPH
University of Colorado Denver Hemophiia and Thrombosis Center
Track Two: For Researchers
Tapping into the Data and Sample Repositories to Initiate Research Projects: Introduction to ATHN Data and Sample Repositories and Resources
Tapping into the Data and Sample Repositories to Initiate Research Projects: Introduction to ATHN Data and Sample Repositories and Resources
Michael Recht, MD, PhD
Oregon Health & Science University
Track Two: For Researchers
Tapping into the Data and Sample Repositories to Initiate Research Projects: Community Counts
Tapping into the Data and Sample Repositories to Initiate Research Projects: Community Counts
Mariam Voutsis, RN
Mount Sinai School of Medicine
Track Two: For Researchers
Tapping into the Data and Sample Repositories to Initiate Research Projects: My Life, Our Future
Tapping into the Data and Sample Repositories to Initiate Research Projects: My Life, Our Future
Jamie Morales, MD
Biogen
Track Two: For Researchers
Tapping into the Data and Sample Repositories to Initiate Research Projects: ATHN Question Library
Tapping into the Data and Sample Repositories to Initiate Research Projects: ATHN Question Library
Becky Dudley, LSW
American Thrombosis and Hemostasis Network
Breakfast Breakout 1 - Friday
BB1: Focus on Rare Bleeding Disorders
BB1: Focus on Rare Bleeding Disorders
Amy Shapiro, MD, Suchitra Acharya, MD, Barbara Konkle, MD, Diane Nugent, MD
Indiana Hemophuilia and Thrombosis Center, Long Island Jewish Medical Center, BloodWorks Northwest, Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders
Breakfast Breakout 2 - Friday
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
Ellis Neufeld, MD
Children's Hospital Boston
Breakfast Breakout 2 - Friday
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
Judith Kadosh, RN, BSN
Hemopilia Center of Western Pennsylvania
Breakfast Breakout 2 - Friday
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
BB2: ATHN 2 for Investigator Teams – Factor Switching Study
Erin Cockrell, DO
St. Joseph's Hospital Center for Bleeding and Clotting Disorders
Breakfast Breakout 4 - Friday
BB4: Making the Most of Community Counts Data
BB4: Making the Most of Community Counts Data
Marilyn Manco-Johnson, MD
University of Colorado Denver Hemophilia and Thrombosis Center
Breakfast Breakout 5 - Friday
BB5: ANCC Hemostasis Nurse Certification - Demystifying the Process
BB5: ANCC Hemostasis Nurse Certification - Demystifying the Process
Marian E. Santaella, RN-BC, MSN, CPHON®
University of Miami
Breakfast Breakout 5 - Friday
BB5: ANCC Hemostasis Nurse Certification - Demystifying the Process
BB5: ANCC Hemostasis Nurse Certification - Demystifying the Process
Natalie Duncan, MPH
Indiana Hemophiilia and Thrombosis Center
Breakfast Breakout 6 - Friday
BB6: ATHN 4 for Investigator Teams – Transitioning Care for Patients with Venous Thromboembolism
BB6: ATHN 4 for Investigator Teams – Transitioning Care for Patients with Venous Thromboembolism
Madhvi Rajpurkar, MD, Maria T. DeSancho, MD
Children's Hospital of Michigan Hemostasis and Thrombosis Center; Weill Cornell Medical Center
Breakfast Breakout 7 - Friday
BB7: My Life, Our Future – Accessing Carrier Testing and What It Means to Your Patients and Their Families
BB7: My Life, Our Future – Accessing Carrier Testing and What It Means to Your Patients and Their Families
Sarah Ruuska, MPH, Cynthia Branch, MBA, Kristi Norton, CCRP, Pam Bryant
BloodWorks Northwest, American Thrombosis & Hemostasis Network, University of Colorado Denver Hemophilia and Thrombosis Center, Emory / Children's Health of Atlanta Comprehensive Hemophilia Program
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:
Kathryn McLaughlin, MPH, Moderator
MCHB/DSCSHN/Genetic Services Branch, National Hemophilia Program, Emory/Children's Health of Atlanta Comprehensive Hemophilia Program
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: National Strategy
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: National Strategy
Ann Forsberg, MPH
American Thrombosis and Hemostasis Network
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: Quality Metrics
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: Quality Metrics
Nathan Hagstrom, MD
Lehigh Valley Hospital
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: Building a Network of Coaches to Increase QI Capacity
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives: Building a Network of Coaches to Increase QI Capacity
Heidi Lane, PT
Intermountain Hemophilia and Trombosis Center - Utah
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:Implementing QI at the HTC Level
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:Implementing QI at the HTC Level
Lisa Palmer, DO
Hemophilia Outreach Center
General Session - Friday AM McLaughlin Panel
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:Moving Forward
National Hemophilia Program Coordinating Center: Quality Improvement Initiatives:Moving Forward
Christine Kempton, MD
Emory / Children's Health of Atlanta Comprehensive Hemophilia Program
General Session - Friday AM McLaughlin Panel
Improving Health Outcomes: WGBD Directory
Improving Health Outcomes: WGBD Directory
Ann-Marie Nazzaro, PhD
Improving Health Outcomes: WGBD Directory
General Session - Friday AM Raffini Panel
ATHN Today - Project Progress Update
ATHN Today - Project Progress Update
Leslie Raffini, MD, Moderator
Children's Hospital of Philadelphia
General Session - Friday AM Raffini Panel
ATHN Today - Project Progress Updates: ATHN 2 - Factor Switching Study
ATHN Today - Project Progress Updates: ATHN 2 - Factor Switching Study
Ellis Neufeld, MD
Children's Hospital Boston
General Session - Friday AM Raffini Panel
ATHN Today - Project Progress Updates: ATHN 4 - Transition of Care for VTE Patients
ATHN Today - Project Progress Updates: ATHN 4 - Transition of Care for VTE Patients
Madhvi Rajpurkar, MD
Children's Hospital of Michigan Hemostasis and Thrombosis Center
General Session - Friday AM Raffini Panel
ATHN Today - Project Progress Updates: ATHN 5 - Hepatitis C Treatment Outcomes
ATHN Today - Project Progress Updates: ATHN 5 - Hepatitis C Treatment Outcomes
Christopher Walsh, MD, PhD
Mount Sinai School of Medicine
General Session - Friday AM Raffini Panel
ATHN Today - Project Progress Updates: The DREAM Awards
ATHN Today - Project Progress Updates: The DREAM Awards
Sarah O'Brien, MD
Nationwide Children's Hospital
General Session - Friday AM Recht Panel
A Look to the Future for ATHN and You!:
A Look to the Future for ATHN and You!:
Michael Recht, MD, PhD. Moderator
Oregon Health & Science University
General Session - Friday AM Recht Panel
A Look to the Future for ATHN and You!: Government Partner Perspective - Beyond the Hemophlia Gene
A Look to the Future for ATHN and You!: Government Partner Perspective - Beyond the Hemophlia Gene
W. Keith Hoots, MD
DHHS/NIH/NHLCI/DBDR/OD
General Session - Friday AM Recht Panel
A Look to the Future for ATHN and You!: Hematologist Perspective
A Look to the Future for ATHN and You!: Hematologist Perspective
Courtney Thornburg, MD
Rady Children's Hospital San Diego
General Session - Friday AM Recht Panel
A Look to the Future for ATHN and You!: Industry Consortium Partner Perspective
A Look to the Future for ATHN and You!: Industry Consortium Partner Perspective
Sharon Richardson, PHhD
Shire
 

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