ATHN Data Summit 2015

ATHN Data Summit 2015

This year’s annual meeting will focus on Results—the results we achieved over the past year and the results we are striving for in the future.

Who Should Attend

The ATHN Data Summit provides a unique opportunity for the HTC team to meet colleagues, share ideas, celebrate accomplishments and work together to reach new heights. ATHN-affiliated HTCs and community, government and industry partners are invited to attend, including:

  • Principal Investigator / Alternate PI of ATHN Affiliates
  • Medical directors
  • Nurse coordinators
  • Clinical team members (nurses, social workers, physical therapists, pharmacists, genetic counselors, etc.)
  • Data managers
  • HTC regional leadership (Scientific / Administrative)
  • Non-HTC thrombosis center team members
  • Government partners
  • Industry partners


Join us in Chicago, October 29–30, 2015. Register today. Registration and a welcome lunch reception begin at 11:00 a.m. on Thursday, October 29 followed by the opening session at 1:00 p.m. The robust agenda concludes at 1:00 p.m. on Friday, October 30. Several ATHN committees will also meet in the morning of October 29. There is no registration fee. Please see the full schedule below.

Registration Fee

There is no registration fee for ATHN Affiliates, government partners, community liaisons and Industry Consortium members attending the ATHN Data Summit.


The ATHN Data Summit will be held at the Loew’s Chicago O’Hare Hotel:

5300 N River Road
Rosemont IL 60018

You can make your hotel reservation using the Loew’s reservations link: ATHN Data Summit Hotel Reservations.

Or call the Loews O’Hare reservation line and identify yourself as an attendee of the ATHN Data Summit 2015 when making your reservation. The toll-free numbers is (877) 868-9134. To receive the conference rate of $209 per night, reservations must be booked by October 06, 2015. Scroll down for more hotel information.

ATHN Data Summit 2015 Schedule
October 28, 2015: Pre-Conference Meetings

1:00 pm - 5:00 pm

National Hemophilia Program Coordinating Center (NHPCC) Advisory Group (Invitation only)

October 29, 2015

8:00 am - 11:00 am

Regional Leadership Meeting (Invitation only)

11:00 am - 12:15 pm

ATHN Committee Meetings (Invitation only)

  • Rare Disorders
  • Thrombosis
  • Data Quality Committee
  • Research Committee
  • Communications Committee
  • NHPCC Genetics Work Group
  • Beta Testers Work Group

11:00 am - 12:00 pm

ATHN 101: Gain a better understanding ATHN Projects
(Specially designed for new HTC staff and first time Data Summit attendees)

11:00 am - 12:00 pm

QI Education: Introduction to the Science and Practice of Quality Improvement
(Open to the entire HTC multi-disciplinary team)

11:00 am - 1:00 pm

Registration and Welcome Lunch Reception

10:00 am - 1:00 pm

ATHN Industry Consortium and Community Partner Exhibits

October 29, 2015

1:00 pm - 1:10 pm

Opening Session

1:10 pm - 2:00 pm

State of ATHN

2:00 pm - 3:00 pm

Research Results

  • ATHN 1 – A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population – Findings and Next Steps
  • My Life, Our Future - FVIII and FIX Gene Variants - Predicting Pathogenicity – Advances in Knowledge Even Before the Research Repository is Opened
  • ATHN 3 – Radionuclide Synovectomy – A Multicenter Collaboration Using the ATHNdataset

3:00 pm - 3:15 pm


3:15 pm - 3:45 pm

Research Results in Progress

  • ATHN 2 - A Longitudinal Observational Study of Previously Treated Hemophilia Patients Switching Coagulation Replacement Factor Products – This Study Is Launched!

3:45 pm - 4:00 pm

Technology Infrastructure Results

  • Advances to Support Research, Surveillance and Quality of Care

4:00 pm - 4:15 pm


4:15 pm - 5:30 pm


Track One:
Results Needed: Eradication of HCV
Adult Practitioners

Track Two:
Results Needed: Successful Transition of Adolescent Patients
Pediatric Practitioners

Track Three:
Getting the Most out of ATHN Systems
Data Managers

6:30 pm - 8:30 pm

ATHN Networking Reception

October 30, 2015

7:00 am - 9:00 am

ATHN Industry Consortium and Community Partner Exhibits

7:00 am - 9:00 am

Breakfast Buffet

8:00 am - 9:15 am

Breakfast Breakouts

  • BB1: ATHN 1 ATHN 1a (Investigator teams)
    A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population/ Longitudinal Prospective Study of Chronic Kidney Disease

  • BB2: ATHN 2 (Investigator teams)
    A Longitudinal Observational Study of Previously Treated Hemophilia Patients (PTPs) Switching Factor Preparations

  • BB3: ATHN Systems
  • BB4: Data Quality: Getting it Right the First Time
  • BB5: My Life, Our Future
  • BB6: American Nurse Credentialing Center (ANCC) Hemostasis Nursing Certification
  • Program
  • BB7: Personalized Medicine - The Role of PK

9:15 am - 9:30 am


9:30 am - 10:15 am

Community Counts Results

10:15 am - 11:00 am

National Hemophilia Program Coordinating Center

11:00 am - 11:15 am


11:15 am - 12:00 pm


  • Redefining Core Data
  • Accessing Data for Research
  • Grants and Awards

12:00 pm - 12:45 pm

A Look to the Future

12:45 pm - 1:00 pm

Closing Remarks

Thank You

We appreciate the generous contributions of the ATHN Industry Consortium.

Founding Visionary Partner

Novo Nordisk

Visionary Partners


Industry Leader


Industry Supporters

CSL Behring, Pfizer Hemophilia, Bayer HealthCare

We welcome your involvement, please join us for the ATHN Data Summit. Register now.

ATHN Data Summit 2015 Accommodations

We have reserved a block of rooms at the Lowe’s O’Hare Hotel at a special conference rate of $209 per night for ATHN Data Summit 2015 attendees. The Loew’s O’Hare is a luxury hotel with free airport shuttle, restaurants and other amenities.

Save When You Make Your Reservation by October 6th

You can use the Loew’s Reservations Link: ATHN Data Summit Hotel Reservations. Or call the Loews O’Hare reservation line and identify yourself as an attendee of the ATHN Data Summit 2015 when making your reservation. The toll-free numbers is (877) 868-9134. To receive the conference rate of $209 per night, reservations must be booked by October 06, 2015.


Situated near the airport, the Lowe’s O’Hare Hotel is within a 10-minute walk of Rosemont Theatre and Donald E. Stephens Convention Center. Rivers Casino and Allstate Arena are also within 3 miles (5 km).

Hotel Features

This smoke-free hotel features a restaurant, a nightclub, and a fitness center. Free WiFi in rooms and public areas and a free airport shuttle are also provided. Additionally, a bar/lounge, a coffee shop/café, and a 24-hour business center are onsite.

Dining at the Loew’s O’Hare includes Mediterranean at Fresco 21, fresh seafood at McCormick & Schmick’s, and steaks at The Capital Grille. The Loew’s O’Hare also features the Art/Museo gallery showcases rotating exhibits by local artists, and live music and comedy on stage in the Montrose Room.

Room Amenities

All 556 rooms provide free WiFi and free wired Internet, flat-screen TVs with cable channels, and conveniences like sitting areas and coffee makers. Other guest amenities include pillowtop beds, iPod docks, and 24-hour room service.

Directions and Transportation

O’Hare Ground Transportation

Airport Shuttle
Loews Chicago O’Hare Hotel is located just two miles from the airport and offers a complimentary airport shuttle to all guests. The shuttle also serves the nearby CTA station.

Please note: O’Hare Airport will be undergoing maintenance/renovation starting May 1, 2015 and lasting 6 months. During that time, the Loew’s shuttle will only be able to drop off guests at the airport at the “shuttle drop off/pick up area”. Previously, guests going to the airport from the Loew’s O’Hare would be dropped off at their individual gates. Sadly this won’t be possible during this period. Given the size of the airport, guests should allow extra time to get to their gates as they will need to walk over from the shuttle area. This change affects all airport hotel shuttles, not just our own.

Where to Catch the Shuttle from the Airport to Loews Chicago O’Hare

  • For domestic flights, pick up is at the Hotel Shuttle Center, Door #2. Exits to the shuttle center are located by baggage claim. Follow the red Shuttle Center signs.
  • For all International flights or for domestic flights between 1 am and 4 am, please call 847-544-5300 to arrange for service.
Bus/Shuttle Center

The Bus/Shuttle Center is where you can catch regional buses, our airport-hotel shuttle and other hotel courtesy buses. Parking shuttles and airport rental car agencies are also located here.

Airport Transit System

The ATS is a free rail system operating between the domestic terminals, the international terminal and long-term parking lots. The service runs 24 hours.

Rental Cars

Rental car agencies can be found near the baggage claim areas of Terminals 1, 2 and 3 on the airport’s lower level.

Taxi Cabs

Shared ride service is available and taxicabs can be located on a first-come, first-serve basis at the lower level curb front of all terminals.

For more information about O’Hare Airport transportation, go to

Local Attractions

MB Financial Park at Rosemont
Located within walking distance (0.48 miles) of the Loew’s O’Hare Hotel, MB Financial Park at Rosemont is a 200,000 square-foot entertainment and dining complex that opened in 2012 and is home to 12 venues offering upscale international cuisine, live music, comedy, state-of-the-art film, bowling and more. This new entertainment district is a one-stop suburban destination for big city dining, entertainment, nightlife, and family fun. The common area is used for various outdoor seasonal activities, including a climate-controlled NHL-sized ice rink in the winter months for Skating in the Park. Visit for more fun details.

You can also visit for other area attractions, restaurants and points of interest near the hotel.

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