My Life, Our Future

My Life, Our Future: Enrolling Patients Through December 15, 2017

Since My Life, Our Future (MLOF) began in 2012, hemophilia treatment centers (HTCs) and patients across the country have taken part in this impactful initiative. Thanks to your support, we have been able to meet and exceed the two primary program goals, genotyping nearly 10,000 people with hemophilia, and creating the world’s largest genetic hemophilia research repository. Further still, we expanded the program to include known or potential carriers of hemophilia.

MLOF enrollment is available through December 15, 2017, with a focus on enrolling 2,000 confirmed hemophilia carriers in the MLOF Research Repository by then. We are more than half way towards this goal, so please talk to your patients about enrolling soon!

As noted, the final day to enroll patients in MLOF is December 15, 2017. Samples must arrive at Bloodworks Northwest by December 20, 2017; they will not be accepted after this date. Genotyping results for samples received by December 20, 2017 will be returned during the first half of 2018. Further information about IRBs, contracting arrangements, and data cleaning at the HTC level is forthcoming.

For more information, we encourage you to:

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