About Us

ATHN Committees

Our committees provide insightful direction to help us deliver results that benefit the bleeding and clotting disorders community today while focusing on the needs of tomorrow. More than 100 individuals share their time, energy, and knowledge in the areas of science, clinical practice, infrastructure operations, and governance. We are extremely proud and appreciative of their enthusiastic dedication and support.

Science and Translation to Practice Committees

Research Committee – Provides guidance to the Board regarding ATHN’s research agenda, demonstration projects, design of studies, site credentialing, and the core capabilities ATHN needs in order to facilitate research across study sites, as well as overseeing research project review with partners such as Hemostasis & Thrombosis Research Society (HTRS).

Data Quality Committee – Responsible for refining a methodology for validating and ensuring quality data for ATHN projects and studies with a focus on the ATHNdataset and Community Counts public health surveillance.

Rare Coagulation Disorders Committee – Guides the selection of priorities in rare bleeding disorders, recommends collaborative studies to the ATHN Board, and ensures the scientific integrity of projects and publications related to rare disorders.

Thrombosis Committee – Guides the development of an ATHNdataset for thrombosis, recommends collaborative studies to the ATHN Board, and ensures the scientific integrity of core terminology, projects, and publications related to thrombosis.

Infrastructure Operations Committees

Community Relations and Communications Committee – Ensures that an accurate and compelling communications strategy cultivates collaboration between ATHN and the bleeding and clotting disorders community, including ATHN Affiliates, the National Hemophilia Program Coordinating Center (NHPCC), government and industry partners, community patient advocacy organizations, and the patients they serve.

Privacy, Security, and Data Access Committee – Provides guidance to the Board and oversight of ATHN’s operations to ensure privacy of patient data and security of the ATHNdataset. It also cultivates open and transparent processes that allow for valuable data access and sharing consistent with ATHN’s core values.

Technology Committee – Conducts pre-release testing and reviews activities to help ensure the growth of a secure, stable, and flexible web-based information infrastructure with standardized content that is expandable to other disorders, service providers, and uses (including research). This infrastructure serves as the solid foundation for ATHN’s future.

Governance Committees

Budget and Finance Committee – Oversees ATHN’s financial policies and practices, along with recommending and monitoring the annual budget, annual audit, and ATHN investments. Also provides guidance to the Board related to the fiscal well-being of ATHN.

Executive Committee – Acting as a liaison between the Board and ATHN’s president and CEO, this committee suggests policies to the Board and ensures that all Board policies are carried out. It may also act and pass on routine business matters or take interim action on urgent matters, which are reviewed by the Board at its next meeting.

ATHN Nominating Committee – Develops general criteria regarding qualifications and selection of Board members, recommends candidates for election to the Board, and otherwise supports the Board in succession planning and efficient transition consistent with ATHN by-laws, policies, and procedures.

Outcomes Committee – To recommend priorities for outcome measures and tools to be used in ATHN projects and a plan for funding.

In addition, each major project or research study is managed through a Steering Committee and work groups.

If you are you interested in serving on one of our committees, we welcome you to apply today.

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