ATHN Data Summit 2015 Presentations

ATHN Data Summit 2015 Presentations

Welcome to the ATHN Data Summit 2015 presentations page. You may quickly view any of the presentations by using the Quickview option or download the presentations by selecting the download button at the end of the list below.

Pre-conference - Thursday
ATHN 101: Gain a better understanding of ATHN Projects
ATHN 101:  Gain a better understanding of ATHN Projects
Becky Dudley
American Thrombosis and Hemostasis Network
Pre-conference - Thursday
QI Education: Introduction to the Science and Practice of Quality Improvement
QI Education:  Introduction to the Science and Practice of Quality Improvement
Marjorie M. Godfrey, PhD, MS, BSN, FAAN
The Dartmouth Institute for Health Policy & Clinical Practice
General Session - Thursday
The State of ATHN: Organization Status
The State of ATHN: Organization Status
Diane Aschman, MS
American Thrombosis and Hemostasis Network
General Session - Thursday
The State of ATHN: Research Status
The State of ATHN: Research Status
Steven Pipe, MD
University of Michigan Hemophilia and Coagulation Disorders
General Session - Thursday
Research Results: ATHN 1 – A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population: Celebrating our Success!
Research Results: ATHN 1 – A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population: Celebrating our Success!
Barbara Konkle, MD
Bloodworks Northwest
General Session - Thursday
Research Results: My Life, Our Future – FVIII and FIX Gene Variants - Predicting Pathogenicity - Advances in Knowledge Even Before the Research Repository is Opened
Research Results: My Life, Our Future – FVIII and FIX Gene Variants - Predicting Pathogenicity - Advances in Knowledge Even Before the Research Repository is Opened
Jill Johnsen, MD
Bloodworks Northwest
General Session - Thursday
Research Results: Radionuclide Synovectomy – A Multicenter Collaboration Using the ATHNdataset
Research Results: Radionuclide Synovectomy – A Multicenter Collaboration Using the ATHNdataset
Amy Dunn, MD
Nationwide Children's Hospital
General Session - Thursday
Research Results In Progress: ATHN 2 - A Longitudinal Observational Study of Previously Treated Patients Switching Coagulation Replacement Factor Products
Research Results In Progress:  ATHN 2 - A Longitudinal Observational Study of Previously Treated Patients Switching Coagulation Replacement Factor Products
Ellis Neufeld, MD
Children's Hospital Boston
General Session - Thursday
Technology Infrastructure: Advances to Support Research, Surveillance and Quality of Care
Technology Infrastructure:  Advances to Support Research, Surveillance and Quality of Care
Crystal Watson
American Thrombosis and Hemostasis Network
Track One: Adult Practitioners
Results Needed: Eradication of HCV Hepatitis C and Hemophilia – The Beginning of the End
Results Needed:  Eradication of HCV Hepatitis C and Hemophilia – The Beginning of the End
Christopher Walsh, MD, PhD
Mount Sinai School of Medicine
Track One: Adult Practitioners
Results Needed: Therapeutic breakthroughs – What is new in the last months?
Results Needed: Therapeutic breakthroughs – What is new in the last months?
Bruce Luxon, MD, PhD
Georgetown University
Track One: Adult Practitioners
Results Needed: One HTC’s experience – Impact on patients, insurance navigation and intervention strategies
Results Needed: One HTC’s experience – Impact on patients, insurance navigation and intervention strategies
Susan Cutter, MSW, MPA
Penn Comprehensive Hemophilia and Thrombophilia Program / Hospital of the University of Pennsylvania
Track One: Adult Practitioners
Results Needed: Tracking progress - Quality measures
Results Needed: Tracking progress - Quality measures
Pam Bryant, MS
Emory / Children's Healthcare of Atlanta Comprehensive Hemophlilia Program
Track Two: Pediatric Practitioners
Track for Pediatric Practitioners: Results Needed
Track for Pediatric Practitioners: Results Needed
Deborah Brown, MD
Gulf States Hemophilia and Thrombophilia Center
Track Two: Pediatric Practitioners
Results Needed: Successful Transition of Adolescent Patients
Results Needed: Successful Transition of Adolescent Patients
Marjorie M. Godfrey, PhD, MS, BSN, FAAN
The Dartmouth Institute for Health Policy & Clinical Practice
Track Three: For Data Managers
Results Needed: Getting the Most Out of ATHN Systems
Results Needed:  Getting the Most Out of ATHN Systems
Alan Shier
American Thrombosis & Hemostasis Network
Breakfast Breakout 1 - Friday
BB1: ATHN 1 / ATHN 1a - A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population, including Chronic Renal Disease
BB1: ATHN 1 / ATHN 1a - A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population, including  Chronic Renal Disease
Barbara Konkle, MD, PI Sumi Sood, MD Sarah Galdzicka, BA
Bloodworks Northwest;University of Michigan Hemophilia and Coagulation Disorders; Bloodworks Northwest
Breakfast Breakout 2 - Friday
BB2: ATHN 2 - A Longitudinal Observational Study of Previously Treated Hemophilia Patients (PTPs) Switching Factor Preparations
BB2: ATHN 2 - A Longitudinal Observational Study of Previously Treated Hemophilia Patients (PTPs) Switching Factor Preparations
Ellis Neufeld, MD, PhD
Children's Hospital Boston
Breakfast Breakout 2 - Friday
BB2: ATHN 2 - Good Documentation Practices for Clinical Research
BB2: ATHN 2 - Good Documentation Practices for Clinical Research
Ellen McCarthy, MPH
American Thrombosis and Hemostasis Network
Breakfast Breakout 3/4 - Friday
BB3/BB4: Data Quality: Getting it Right the First Time
BB3/BB4: Data Quality: Getting it Right the First Time
Alan Shier
American Thrombosis and Hemostasis Network
Breakfast Breakout 5 - Friday
My Life Our Future Study
<i>My Life Our Future</i> Study
Sarah Ruuska, MPH Sarah Roberge, MPH Sumedha Ghate, MS, CGC
Bloodworks Northwest; Hemophilia Outreach Center; Bloodworks Northwest
Breakfast Breakout 6 - Friday
BB6: Hemostasis Nurse Certification Through Portfolio Offered from the American Nurses Credentialing Center
BB6: Hemostasis Nurse Certification Through Portfolio Offered from the American Nurses Credentialing Center
Lourdes Careaga, BSN, RN, CMSRN
American Nurses Credentialing Center (ANCC)
Breakfast Breakout 7 - Friday
BB 7: Personalized Medicine – The Role of Population-based Pharmacokinetics and Goal Attainment Scaling
BB 7: Personalized Medicine – The Role of Population-based Pharmacokinetics and Goal Attainment Scaling
Stacy Croteau, MD
Children's Hospital Boston
Breakfast Breakout 7 - Friday
BB 7: Personalized Medicine – The Role of Population-based Pharmacokinetics and Goal Attainment Scaling
BB 7: Personalized Medicine – The Role of Population-based Pharmacokinetics and Goal Attainment Scaling
Leonard Valentino, MD
Baxalta US, Inc.
General Session - Friday
Surveillance Results: Community Counts! Public Health Surveillance for Bleeding Disorders
Surveillance Results: Community Counts! Public Health Surveillance for Bleeding Disorders
Becky Dudley, MPH John Drake, MSN, RN Vanessa Byams, MPH Marilyn Manco-Johnson, MD
American Thrombosis and Hemostasis Network; Great Plains Region; Centers for Disease Control and Prevention - NCBDDD; University of Colorado Denver Hemophilia and Thrombosis Center
General Session - Friday
National Hemophilia Program Coordinating Center Improving Outcomes: HP2020 Measures
National Hemophilia Program Coordinating Center Improving Outcomes: HP2020 Measures
Kathryn McLaughlin, MPH
MCHB/DSCSHN/Genetic Services Branch, National Hemophilia Program
General Session - Friday
National Hemophilia Program Coordinating Center Improving Outcomes: Quality Metrics
National Hemophilia Program Coordinating Center Improving Outcomes: Quality Metrics
Nathan Hagstrom, MD
Lehigh Valley Hospital
General Session - Friday
Securing Data for Results: Models for Quality Data Collection
Securing Data for Results: Models for Quality Data Collection
Moderator: Becky Dudley, LCSW Christine L. Kempton, MD, MSc Laurel McKernan, MS, RN
American Thrombosis & Hemostasis Network; Emory / Children's Healthcare of Atlanta Comprehensive Hemophlilia Program; Dartmough-Hitchcock Comprehensive Hemophilia and Thrombosis Center
General Session - Friday
Securing Data for Results: Data Quality 2.0
Securing Data for Results: Data Quality 2.0
Jeffrey Hord, MD
Children's Hopsital Medical Center of Akron
General Session - Friday
Securing Data for Results: Accessing Data for Research
Securing Data for Results: Accessing Data for Research
Michael Recht, MD, PhD
Oregon Health & Science University
General Session - Friday
Securing Data for Results: ATHNdataset Grants and Awards (Data Quality Counts; DREAM Award)
Securing Data for Results: ATHNdataset Grants and Awards (Data Quality Counts; DREAM Award)
Barbara Konkle, MD
Bloodworks Northwest
General Session - Friday
A Look to the Future: Transition of Care for Persons with Venous Thromboembolism
A Look to the Future: Transition of Care for Persons with Venous Thromboembolism
Madhvi Rajpurkar, MD Maria De Sancho, MD MSc
Children's Hospital of Michigan Hemostasis and Thrombosis Center; Weill Cornell Medical Center
General Session - Friday
ATHN 4 Transition of Care (TOC) for Patients with VTE
ATHN 4 Transition of Care (TOC) for Patients with VTE
Madhvi Rajpurkar, MDMaria De Sancho, MD MSc
On behalf of ATHN Thrombosis Committee
 

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