News & Events

ATHN Data Summit 2014 Presentations

Welcome to the ATHN Data Summit 2014 presentations page. You may quickly view any of the presentations by using the Quickview option or download the presentations by selecting the download button at the end of the list below.

Pre-conference - Thursday
ATHN 101: An overview of ATHN's mission and programs
ATHN 101:  An overview of ATHN's mission and programs
Becky Dudley
American Thrombosis and Hemostasis Network
General Session - Thursday
The State of ATHN: Progress in 2014
The State of ATHN: Progress in 2014
Diane Aschman, MS
American Thrombosis and Hemostasis Network
General Session - Thursday
ATHN Assets for the Community: The ATHdataset
ATHN Assets for the Community: The ATHdataset
Michael Recht, MD, PhD
Oregon Health & Science University
Track One: For Researchers
Advancing Knowledge through Investigator Initiated Research: Young Investigator DREAM Award
Advancing Knowledge through Investigator Initiated Research: Young Investigator DREAM Award
Diane Nugent, MD for HTRS/ATHN Joint Research Committee
Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders
Track Three: For Clinicians
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately:Develop a Pedigree to Target at Risk Individuals
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately:Develop a Pedigree to Target at Risk Individuals
Michelle Alabek, MS, CGC
Hemophilia Center of Western Pennsylvania
Track Three: For Clinicians
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately: Educating Families
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately: Educating Families
Regina Butler, RN
Children's Hospital of Philadelphia (CHOP)
Breakfast Breakout 3 - Friday
Rare Disorders Work Group
Rare Disorders Work Group
Suchitra Acharya, MD, Amy Shapiro, MD
Long Island Jewish Medical Center Comprehensive Hemophilia Center / Indiana Hemophilia and Thrombosis Center
General Session - Friday
Making the Best Care Even Better: National Hemophilia Program Coordinating Center in Action
Making the Best Care Even Better: National Hemophilia Program Coordinating Center in Action
Ann Forsberg
American Thrombosis and Hemostasis Network
General Session - Friday
NHPCC: Care of Minirity Populations
NHPCC: Care of Minirity Populations
Marisela Trujillo, MSW
Gulf States Hemophilia and Thrombophilia Center
General Session - Friday
NHPCC: Transition Services
NHPCC: Transition Services
Deborah Brown, MD
Gulf States Hemophilia and Thrombophilia Center
General Session - Friday
NHPCC: 340B Pharmacy Services
NHPCC: 340B Pharmacy Services
Laurel McKernan, MSN, RN
Dartmouth-Hitchcock Comprehensive Hemophilia and Thrombosis Center
General Session - Friday
Quality Improvement: Which Measures? What Data?
Quality Improvement: Which Measures? What Data?
Susan Cutter, MSW, MPA
Penn Comprehensive Hemophilia and Thrombophilia Program / Hospital of the University of Pennsylvania
General Session - Friday
Quality Improvement: National Metrics
Quality Improvement: National Metrics
Nathan Hagstrom, MD
Lehigh Valley Hospital
General Session - Friday
Quality Improvement: Healthy People 2020
Quality Improvement:  Healthy People 2020
Kathryn McLaughlin, MPH
MCHB/DSCSHN/Genetic Services Branch, National Hemophilia Program
General Session - Friday
Future Directions: Securing Data - Ensuring Data Quality
Future Directions: Securing Data - Ensuring Data Quality
Jeffrey Hord, MD
Children's Hopsital Medical Center of Akron
General Session - Friday
Future Directions: Securing Data - Rare Disorders
Future Directions: Securing Data - Rare Disorders
Suchitra Acharya, MD, Amy Shapiro, MD
Long Island Jewish Medical Center Comprehensive Hemophilia Center / Indiana Hemophilia and Thrombosis Center
General Session - Friday
Future Directions: Advancing Technology: Using the ATHNdataset
Future Directions: Advancing Technology: Using the ATHNdataset
Michael Recht, MD, PhD
Oregon Health & Science University
General Session - Friday
Future Directions: Advancing Technology: IPSG Prophylaxis Survey
Future Directions: Advancing Technology: IPSG Prophylaxis Survey
Cindy Leissinger, MD
Louisiana Center for Bleeding and Clotting Disorders / Tulane Uiversity Health Science Center
General Session - Friday
Affiliate Driven Initiatives: Our Path to Tomorrow
Affiliate Driven Initiatives: Our Path to Tomorrow
Steven Pipe, MD
University of Michigan Hemophilia and Coagulation Disorders
General Session - Thursday
The State of ATHN: 2015 and Beyond
The State of ATHN: 2015 and Beyond
Steven Pipe, MD
University of Michigan Hemophilia and Coagulation Disorders
General Session - Thursday
ATHN Assets for the Community: The ATHN Infrastructure
ATHN Assets for the Community: The ATHN Infrastructure
Brenda Riske, MS, MBA, MPA
University of Colorado Denver Hemophilia and Thrombosis Center
Track Three: For Clinicians
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately: Providing Access to Free Genetic Testing
Track Three for Clinicians: Registry for Bleeding Disorders: Collecting Data Accurately: Providing Access to Free Genetic Testing
Sarah Ruuska, MPH
Puget Sound Blood Center and Program
Breakfast Breakout 4 - Friday
Thrombosis
Thrombosis
Madhvi Rajpurkar, MD
Children's Hospital of Michigan Hemostasis and Thrombosis Center
Breakfast Breakout 5 - Friday
My Life Our Future Study: Preparing for Carrier Testing
My Life Our Future Study: Preparing for Carrier Testing
Sarah Ruuska
Puget Sound Blood Center and Program
Breakfast Breakout 6 - Friday
My Life Our Future - Start-up
My Life Our Future - Start-up
Cynthia Branch
American Thrombosis and Hemostasis Network
Breakfast Breakout 7 - Friday
Telemedicine
Telemedicine
Rushni Kulkarni, MD / Colleen Valad-Hix, DO
Michigan State University Center for Bleeding Disorders & Clotting Disorders; Portage Health
General Session - Friday
Future Directions: Transforming Care - Telemedicine
Future Directions: Transforming Care - Telemedicine
Roshni Kulkarni, MD
Michigan State University Center for Bleeding Disorders & Clotting Disorders
 

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