ATHN Data Summit 2013 Presentations

ATHN Data Summit 2013 Presentations

Welcome to the ATHN Data Summit 2013 presentations page. You may quickly view any of the presentations by using the Quickview option or download the presentations by selecting the download button at the end of the list below.

Pre-conference - Thursday
ATHN 101: Gain a better understanding of ATHN and our Projects
ATHN 101:  Gain a better understanding of ATHN and our Projects
Becky Dudley Kati Keebaugh
American Thrombosis and Hemostasis Network
General Session - Thursday
The State of ATHN
The State of ATHN
Diane Aschman, MS
American Thrombosis and Hemostasis Network
General Session - Thursday
Growing Community Resources: The ATHNdataset
Growing Community Resources: The ATHNdataset
Chris Guelcher, RN
Children's National Medical Center
General Session - Thursday
The ATHNdataset: Project status
The ATHNdataset:  Project status
Barb Konkle, MD
Puget Sound Blood Center
General Session - Thursday
The ATHNdataset: Uses for research
The ATHNdataset:  Uses for research
Steven Pipe, MD
University of Michigan Hemophilia and Coagulation Disorders
General Session - Thursday
The ATHNdataset: Value for advocacy
The ATHNdataset:  Value for advocacy
Tamara Vogel
Oregon Health & Science University
General Session - Thursday
Community Counts: CDC Public Health Surveillance for Bleeding Disorders, CDC Perspective, HTC Patient Population Profile: Success to Date, Mortality Reporting, and Registry for Bleeding Disorders Surveillance: Programs & Plans
Community Counts: CDC Public Health Surveillance for Bleeding Disorders, CDC Perspective, HTC Patient Population Profile: Success to Date, Mortality Reporting, and Registry for Bleeding Disorders Surveillance: Programs & Plans
Becky Dudley, Vanessa Byams, MPH, Michael Recht, MD, Meredith Oakley, Marilyn Manco-Johnson, MD
American Thrombosis and Hemostasis Network / Centers for Disease Control and Prevention - NCBDDD / Oregon Health & Science University / Centers for Disease Control and Prevention - NCBDDD / University of Colorado Denver Hemophilia and Thrombosis Center
Track One: For Researchers
ATHN Cohort Studies, ATHN Safety Surveillance
ATHN Cohort Studies, ATHN Safety Surveillance
Ellis Neufeld, MD
Children's Hospital Boston
Breakout Session 2: Thrombosis
Thrombosis
Thrombosis
Madhvi Rajpurkar, MD
Children's Hospital of Michigan Hemostasis and Thrombosis Center
Breakout Session 3: Rare Bleeding Disorders
Rare Bleeding Disorders
Rare Bleeding Disorders
Suchitra Acharya, MD, Amy Shapiro, MD
Long Island Jewish Medical Center Comprehensive Hemophilia Center / Indiana Hemophilia and Thrombosis Center
Breakout Session 4 - Friday
My Life, Our Future - Join the Effort
My Life, Our Future - Join the Effort
Kati Keebaugh, MPH, Sara Ruuska, Michelle Alabek
American Thrombosis and Hemostasis Network / Puget Sound Blood Center and Program / Hemophilia Center of Western Pennsylvania
General Session - Friday
Outcomes Measure: An International Perspective
Outcomes Measure: An International Perspective
Michelle Witkop DNP, FNP-BC (HERO Study Participant)
Northern Regional Bleeding Disorder Center at Munson Medical Center
General Session - Friday
NHPCC: HTC Needs Assessment
NHPCC: HTC Needs Assessment
Ann Forsberg
American Thrombosis and Hemostasis Network
General Session - Friday
NHPCC: Patient Needs Assessment
NHPCC: Patient Needs Assessment
Regina Butler, RN
Children's Hospital of Philadelphia
General Session - Friday
NHPCC: HP2020 Healthy People
NHPCC: HP2020 Healthy People
Kathryn McLaughlin, MPH
MCHB/DSCSHN/Genetic Services Branch, National Hemophilia Program
General Session - Friday
NHPCC: HRSA Demonstration Project - Opportunity
NHPCC: HRSA Demonstration Project - Opportunity
Steve Humes, MM, MPH
Harold R. Roberts Comprehensive Hemophilia Diagnostic and Treatment Center, The University of North Carolina at Chapel Hill
General Session - Friday
Establishing National Priorities for Technical Assistance and Quality Improvement
Establishing National Priorities for Technical Assistance and Quality Improvement
Nathan Hagstrom, MD
University of Connecticut Health Center
General Session - Friday
Thrombosis: Data Plan for the Future
Thrombosis: Data Plan for the Future
Madhvi Rajpurkar, MD
Children's Hospital of Michigan Hemostasis and Thrombosis Center
General Session - Friday
My Life Our Future: Genotyping for Progress in Hemophilia, Pilot Project Value to HTC Practice and Research, and National Launch
My Life Our Future: Genotyping for Progress in Hemophilia, Pilot Project Value to HTC Practice and Research, and National Launch
Sarah Ruuska, MPH, Michael Tarantino, MD, Val Bias
Puget Sound Blood Center / Bleeding and Clotting Disorders Institute / National Hemophilia Foundation
 

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