We believe better data leads to better care.
At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders. In everything we do, we strive to facilitate continuity of care, foster collaboration, maintain confidentiality, and conserve resources through a common infrastructure.
We partner with more than 135 hemophilia treatment centers (HTCs) across the United States to build a safe, secure national database—the ATHNdataset—that can be used to improve care and support vital research. We leverage our standardized integrated systems, data, and processes to decrease the time and cost to implement projects of significance. And as a national coordinating center, we are constantly working on new projects aimed at gathering data to help increase our understanding of bleeding and clotting disorders, improve access and quality of care for patients and their families.
To learn more about what we do, click on the following topics:
- National Hemophilia Program Coordinating Center
- Community Counts
- My Life, Our Future
- ATHN 1 – Cardiovascular Disease in the Hemophilia Population
- ATHN 2 – Factor Switching Study
- ATHN 3 – Radionuclide Synovectomy
- ATHN 4 – Transition of Care for Patients with VTE
- Plasminogen Deficiency Registry